Heartbroken and sad
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Heartbroken and sad
| Fri, 07-11-2008 - 1:48pm |
I tried to look up Inclusion Body Myopathy, and found a few sites, don't tell much except it is very devestating and I feel this girl will be in a wheelchair in another 6 months time. I hope I'm wrong. I hope they come up with at least a clinical trial. This is very rare she was told, but the following site gives a little of what it's about.
http://www.ninds.nih.gov/disorders/inclusion_body_myositis/inclusion_body_myositis.htm
http://www.wrongdiagnosis.com/i/inclusion_body_myopathy_3_autosomal_dominant/signs.htm
Also, a big question here. What has happened to our Rosemary? I haven't seen her on board for quite awhile.
A good day to all, hugs.


Bea it is very sad, I knew about the disease and the weakness but I didn't know about the swallowing problems. I is so like Lou G, disease and she is in for a long hall and all you can do is encourage.
Betty L. Keep and Angel on your Shoulder & a prayer in your heart.
Yes Mindy, I've also been worried about Rosemary, but read on because I just answered a post today to her.
Thank you Betty.
I am so sorry to hear about your friend..everyday it seems we hear some thing new, someone we know, some awful issue
I hope she will be able to get treatment that will slow/minimize the effects
I heard from the sister of my friend who died and got a link to the online memorail book: a beloved teacher
I posted today, finally..sort of used your 10 point style!
hugs
Dutch
Dutch