Why i havent been around OT:

iVillage Member
Registered: 04-09-2003
Why i havent been around OT:
12
Mon, 05-10-2004 - 6:53pm
I have not been around lately on any of the boards and I thought would let yall know why… just in case you missed me or even noticed……. Thursday I was getting ready to leave for class I had my last final was supposed to be taken just as I got my shoes on I got a call from the nurse from my OB’s office…. My triple screen test I took on the 26th of April came back positive for a genetic disorder and said I needed to wait to hear from my doctor he would be calling me as soon as he got through with his his office visits… I was totally crushed….. I kept thinking of Downs Syndrome needless to say I didn’t make it to my finals… but oh well…. about an hour later he called me from his cell phone on the way to a delivery he informed me that my test came back positive for Trisomy 18 and I really wished he had told me Downs but that wasn’t the case…. He informed me my baby had about a 44% chance of having Trisomy 18 and I so wished he had said Downs …yes less then half the chance but that’s still high and in my book way to high I wanted a negative result….he told me he would be sending me to a perinatalogist specializing in chromosome disorders and they would set everything up Well after a long wait this weekend today I learned my appointment would be Wednesday I will be going in for a level II ultra sound and an amniocenteses the appointment is about 45 minutes in Alabama I had been dreading May 12th for as long as I remember… its my birthday, its when I turn 30, now its when I possibly find out the fate of my unborn…. Now it cant get here soon enough…. They say babies that have Trisomy 18 if they make it to birth will have a 40% chance of death by 1 month…. And 95% chance by the age of 1 and that small 5% is not as they call it a “viable” life so now I may be selfish enough to ask any of you whether it pray, meditate, warship the oak tree in your front yard….. If you can take an extra moment and say a little something for my baby in hopes it was a false positive I would much appreciate it….. Thanks to all of you who have been here for me have a wonderful day…..

Ps… if I can step out of line for a moment….. When we are getting frustrated and things going on here on the boards (I wont say the word but you know I mean) and you feel compelled to get angry because of something someone says… or for the people whom feel the need to just put people down because you think you are better then them and being hateful is the only way you receive happiness in your life remember this is the internet,,,, and in life there is a lot more things happening that need our attention… and before you write your post the anger or the crudeness just sit and think about it first think about who it may affect or hurt and that maybe that person or you are just angry about something in their life or wasting valuable time that could be spent elsewhere…. Misery doesn’t always need company for when it becomes alone it might disappear……

This is Desiree stepping of her soap box now… and again I repeat HAVE A WONDERFUL DAY

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iVillage Member
Registered: 03-25-2003
Mon, 05-10-2004 - 7:08pm
I am praying hard for your baby. It is such a rare disorder - please let it be a false positive! :-(
iVillage Member
Registered: 04-26-2003
Mon, 05-10-2004 - 7:33pm
Oh, Des, I'm so sorry to hear your news! The test does have a very high false-positive rate, but I would be worried sick, too. It is every pregnant mom's nightmare to have one of those tests come back positive. I will be praying for you and your little one every night.

Hugs,

Erin
http://www.GlitterMaker.com/ - Glitter Graphics
Mom
iVillage Member
Registered: 09-08-2003
Mon, 05-10-2004 - 8:25pm
I am so sorry. I don't pray, but you will absolutely be in my thoughts. Keep your chin up and remember baby can feel your thoughts so just concentrate on his wellness.....keep us all posted. I have been where you are and I know how hard it is to be up in the air and there is nothing that anyone can say to make you feel better or calmer, we'll be thinking of you and baby! KSAS
iVillage Member
Registered: 03-11-2004
Mon, 05-10-2004 - 10:15pm
Desiree, My thoughts and prayers are with you and your child. I cannot even begin to imagine the pain you are going through. Here's my prayer;

Dear Heavenly Father I ask that you take Desiree and her child into your loving arms and heal their bodies minds and souls. Please watch over them in the days to come. Give them healing , comfort and love. In Jesus' name Amen.

Hugs to you, Brenda

Hugs, Brenda 

iVillage Member
Registered: 03-26-2003
Mon, 05-10-2004 - 10:28pm
Im so sorry Desiree.

  Shawna-- Proud Cl for 100 Pounds or More to Go 

iVillage Member
Registered: 12-06-2003
Tue, 05-11-2004 - 12:57am
Desi..you know Im here for you no matter the outcome..I will be praying for you and your festus (smile) ya know Im here for you and if I dont stop now Im gonna break out into a song and dance "Ill be there" so if you need me im here !
iVillage Member
Registered: 04-14-2004
Tue, 05-11-2004 - 1:12am
desiree,

it's terrifying to be in limbo, and i am so sorry that you have to experience this worry over something that may turn out to be nothing. i am sending you and yours love and energy. try and let go of the tension as much as possible and please let us know how your pregnancy is going after your appointment.

love,

kathy

iVillage Member
Registered: 06-27-2003
Tue, 05-11-2004 - 9:12am
You are definitly in my thoughts and meditations. I really hope it all works out.


Deb 270/228/145ish  (updated 4/19/04. Next weigh-in: 6/1/04)

 

iVillage Member
Registered: 01-07-2004
Tue, 05-11-2004 - 9:37am
oh des...i wish i could say something that will ease your pain and worry. i will pray for you, the little one on their way, and your family.
iVillage Member
Registered: 09-12-2003
Tue, 05-11-2004 - 10:50am
Hi,

I read your posting last night and I haven't been able to stop thinking about it. I just want you to know that you and the baby are in my thoughts and prayers. No one knows what your going through but you and I wish I could send you a little of my own strength to help you get through this.

My thoughts and prayers to you and your family.

Jennifer

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