Why i havent been around OT:

iVillage Member
Registered: 04-09-2003
Why i havent been around OT:
12
Mon, 05-10-2004 - 6:53pm
I have not been around lately on any of the boards and I thought would let yall know why… just in case you missed me or even noticed……. Thursday I was getting ready to leave for class I had my last final was supposed to be taken just as I got my shoes on I got a call from the nurse from my OB’s office…. My triple screen test I took on the 26th of April came back positive for a genetic disorder and said I needed to wait to hear from my doctor he would be calling me as soon as he got through with his his office visits… I was totally crushed….. I kept thinking of Downs Syndrome needless to say I didn’t make it to my finals… but oh well…. about an hour later he called me from his cell phone on the way to a delivery he informed me that my test came back positive for Trisomy 18 and I really wished he had told me Downs but that wasn’t the case…. He informed me my baby had about a 44% chance of having Trisomy 18 and I so wished he had said Downs …yes less then half the chance but that’s still high and in my book way to high I wanted a negative result….he told me he would be sending me to a perinatalogist specializing in chromosome disorders and they would set everything up Well after a long wait this weekend today I learned my appointment would be Wednesday I will be going in for a level II ultra sound and an amniocenteses the appointment is about 45 minutes in Alabama I had been dreading May 12th for as long as I remember… its my birthday, its when I turn 30, now its when I possibly find out the fate of my unborn…. Now it cant get here soon enough…. They say babies that have Trisomy 18 if they make it to birth will have a 40% chance of death by 1 month…. And 95% chance by the age of 1 and that small 5% is not as they call it a “viable” life so now I may be selfish enough to ask any of you whether it pray, meditate, warship the oak tree in your front yard….. If you can take an extra moment and say a little something for my baby in hopes it was a false positive I would much appreciate it….. Thanks to all of you who have been here for me have a wonderful day…..

Ps… if I can step out of line for a moment….. When we are getting frustrated and things going on here on the boards (I wont say the word but you know I mean) and you feel compelled to get angry because of something someone says… or for the people whom feel the need to just put people down because you think you are better then them and being hateful is the only way you receive happiness in your life remember this is the internet,,,, and in life there is a lot more things happening that need our attention… and before you write your post the anger or the crudeness just sit and think about it first think about who it may affect or hurt and that maybe that person or you are just angry about something in their life or wasting valuable time that could be spent elsewhere…. Misery doesn’t always need company for when it becomes alone it might disappear……

This is Desiree stepping of her soap box now… and again I repeat HAVE A WONDERFUL DAY

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Avatar for suamomi
iVillage Member
Registered: 08-23-2001
Tue, 05-11-2004 - 1:05pm
Oh Desiree...I am so sorry to hear that! I know it's of little comfort probably but that's a 56% that NOTHING is wrong. I also had an abnormal triple screen with a chance of Downs...and my daughter is perfectly healthy without Downs. So there's hope.

You all are in my prayers...I pray for the best possible results.

Hugs

Sarah

(edited because I'm a dork and missed the part about the level II u/s and amnio....hugs to you....and I hope you have good news on your birthday.)


Edited 5/11/2004 2:02 pm ET ET by suamomi

Sarah


 


Avatar for angelinoh
iVillage Member
Registered: 05-19-2003
Tue, 05-11-2004 - 6:38pm
you will be in my thoughts Des! Hope everything turns out ok.one of my sisters had a postive on Downs Syndrome then went she went back for a second test it came back ok and my nephew didn't have any problems. It does happen, hopefully it will be a false positive for you. Can't imagine how u r feeling. Take it easy!

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