Hi, I'm officially delurking
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| Wed, 04-18-2007 - 11:03pm |
I've been checking out this board, trying to get the lay of the land. It seems really supportive so I'm just going to jump in.
My DS will be 5 in a month. His dx is PDD-NOS, he is at a developmental preschool run by the school district and it is wonderful. He has made amazing progress there in the last year. He receives ST and OT as a regular part of almost every day. I feel like we have a good supportive "home" there his teacher and the therapists couldn't be better. He will transition to K in the fall and his school is already preparing for his arrival. We are truly blessed to have such a forward thinking place to go.
I also have a NT DD who will soon be 3. She's a spirited child but doesn't meet any criteria to be considered on the spectrum.
So, if we have such good things in our life, why do I still feel overwhelmed sometimes? We are all suffering for the 100th time this year from a cold. With 2 kids in 2 different schools it isn't a big shock but I want to be healthy, kwim?
So today we absolutely had to go to Wal-Mart. DD needs pull-ups, we are out of two of DS's favorite foods, things are getting critical. So we haul our less than healthy selves to the big W and we are no sooner in the door than DS starts being difficult. He wants to walk, I want him to ride in the back of the cart so things go more quickly. He tries to climb out, I catch him so he doesn't fall. He throws himself on the floor in a huge fit. We now have a huge audience watching to see how I deal with this. So I pick him up (and he's no light weight) I put him in the seat section of the cart which he is really to big for. Now he's crying and coughing hard and I' afraid he might throw up. So we go get a drink of water and he calms down finally and is quite charming.
I hate that feeling of helplessness in public places. For the most part I can ignore what other people think but sometimes like today, when I'm not at top form, I just want to scream at them for making me feel bad. I want to shame them for making us into a spectacle rather than wondering if something else might be the issue.
I have gone so far as use his diagnosis as a weapon to people who are just rude and can't get it. But I hate being driven to that point.
Sorry this got so long but I guess I just needed a safe place to vent a bit.
Thanks,
Heather

(((((HEATHER))))) I'm sorry you're not feeling great and people are just rude! Glad your DS was able to calm and was charming. Hope this is the last cold of the spring and you're feeling better soon!
Welcome and pull up your favorite comfy chair. This is a lovely group of very supportive ladies. I just happen to have some warm from the oven cookies... have one!
Betsy
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((((Heather)))
First off, welcome to our family of support, the sisterhood if you will.
You sounded EXACTLY like my typical trip to the local W.
I feel for you, especailly being sick, lord know we FINALLY got our ds colds kinda under control, found out that he has allergy and possible asthma. UG, it's so frustrating.
As for using DX as a weapon, be there , done that too.
I try to avoid situations like that, but the world doesn't stop for autism ya know ;)
Feel free to vent anytime.
Nora
http://i153.photobucket.com/albums/s225/irishwildrose/pp2.jpg
I'm glad to "officially" welcome you,
visit my blog at www.onesickmother.com
Welcome, Welcome, Welcome Heather~
I think you'd be hard pressed to find anybody on this board who hasn't experienced something similar to your Big W story. Feel free to vent away...nobody here will judge you.
How fabulous that your school is proactive, engaging, and sincerely doing what's best for your son! Man oh man, am I jealous! :-)
Amy
Oh boy Heather, I went thru something similar yesterday but it was with my little guy who has Tourettes. No dx yet, but I'm sure it will come.
We were at my other son's baseball game yesterday and Nicholas started a belching tic. He's really good at it btw (lol just gotta have humor). I knew he was ticcing (versus being a 7 yr old boy) because he was also thrusting his face at me between and during his burps.
He also sneaked a few Biotch's in the burps too (he also had coprolia) so as you could imagine everyone sitting on the small bleacher stared. This one loud mouth lady couldn't stop laughing and saying things like "I guess he's not done yet!!!" That made it even more embarrassing for me. I just hugged him and kept whispering to him "Do you want to move away from the crowd, or Nick can you replace this burp with a silent one?"
Anyway I turned to the lady and flatly said (where everyone could hear), It's Tic. She looked at me, kinda shocked and said a Tic? I said yes, we believe he has Tourettes.
Welllllll that shut her up plenty lol. I bet she won't be so loud mouthed again lololol. And Heeeeeeeeeeeeeeee I bet she'll be even more embarrassed when she finds out I'm the Coaches wife lololol. No one knows me by site as alot of my kids games are when I have to work.
God I hate rude people! I can totally understand where your coming from. We all can, and thats why this is such a great board. We can vent and everyone will understand :)
Lainie
Welcome Heather,
I'm sorry that everyone is sick.
Hi and welcome,
I haven't been around here lately. My ds will turn 5 on May 10th! He has PDD-NOS dx also. We are making the big transition to K. We toured the elementary school earlier this week and are very excited to see what they have there.
Sorry about your public tantrum. I know what you mean about trying to pick your son up and it sure isn't easy now that they weigh more!!!! It is getting more and more difficult.
Molly
Welcome, Heather.
Yep, I think we've all been there.
Welcome to the board, Heather.
I have sooooooooo been there (WalMart), and although I have to say as a single mom I completely stopped taking ds shopping for a while (close to 2 years), with a lot of prep work, he can make short trips, even to WalMart, which we had to do on Easter Day....it was the first time in a LONG time I've braved taking him by myself.
It can get better.