<<....his ped. said the neuro should be able to help me with r/o or in of asd...have any of you gotten a dx from a neuro?>>
I know that the Neuro I talked to about Jack (we haven't seen him yet) said that he does do dx's of ASD, including all the sub-types.
As far as the CD's go, I have no idea. Jack does a lot of things I don't see the other kids do (lining up his Teletubbies, fingers in his ears, rubbing head on carpet like a vaccumm, etc.) but didn't realize they were 'different' activities until I started watching other kids.
Thanks....I never know how to judge gabe...I always feel like I am looking at him under a microscope...would i really think those things are odd if he didn't have such a significat speech problem with sensory issues...I don't know...but it is nice to hear what other 3 year olds do...I know gabe does odd things...I just looking for some solid answers...and I am hoping this neuro can help us......
Some neuro's will dx ASD (although ours didn't). Have you looked into finding a developmental ped or a neuropsychologist? We had Liam dx by the school in 1st grade, and Cian (4) by a psychologist phd who specialised in many neurological dx.
Up until Liam was dx ASD we had seen an OT, child psychiatrist, play therapist, neuropsychologist and developmental ped. He started with the sensory integration dx and then fine and gross motor delays, and finally ADHD. By the beginning of 1st grade it was obvious, we were missing something. Thankfully the school picked up the slack, and ASD was finally brought up.
With Cian we could see certain red flags earlier, although they are very different kids (toy lining, etc) Cian also has low muscle tone throughout, including his mouth and jaw, thus having a speech delay too (dysarthria).
My instinct (and I think yours too) is Gabe is ASD, but as he's little and you have been wandering from professional to professional and they are giving you individual dx's. You need someone who can make sense of all of these dx together.
eg: Separately Liam is HF ASD/ADHD/SID/Mood Disorder-NOS
In reality he has an Autism Spectrum Disorder and all of the above fit into that. Not all ASD kids have all of these, but they may have some or more. Cian has a dx of Aspergers/ADHD/SID. So you see ASD really is a large neurological disorder that happens to include many other dx. btw: apraxia would be a common enough co-morbid too.
Can you look into finding a psychologist who specialises in ASD's or even a developmental pediatrician. Where do you live and I can help you track down someone to give you a more clear picture.
We saw a neuro at age 4 but he only said that ds had a benign tic disorder and would grow out of it. It turns out he wasn't ticcing, he was stimming and he still does it today at age 9. A neuropsych diagnosed first PDD-DOS then Aspergers at age 7. I feel there was a lot of precious time wasted because he did not get early intervention.
My Aspie would spend hours dropping the lid to my spaghetti pot on the floor and watching it spin. He would stim wildly while it spun around and when it stopped he would pick it up and do it all over again. We were always amazed about how excited he got over spinning objects. If we were more knowledgeable about ASD's when he was smaller we would have pushed harder for a diagnosis. We just thought he was a difficult child. The earlier you can get him help the better it will be.
Jessie, I will say that the Dev Pedi we saw was able to "wrap it all together" in a way that the other experts could not.
Before that, Jack had been dx with Verbal Dyspraxia, Hypotonia, Sensory Issues (not SID), Expressive/Receptive Language Delay, Expressive Language Delay (singly), and Developmental Dyspraxia.
The Dev Pedi put all these under the 'provisional PDD-NOS' heading (and she didn't agree with the verbal dyspraxia....I think I had already posted that).
The main reason we are going to a Neurologist is to see if Jack had any issues from being an Emergency C-Section with the cord wrapped around his neck. Apgars were 9 and 10, so we really don't think so. But can't hurt to check.....
Personally, I don't like a neurologist for to r/o an ASD. ASDs are not caused my a specific brain defect. There is nothing you can scan -no definitive tests to run. ASDs are diagnosed my a full history and a clinical psych. evaluation. The best person to put it all together for you -in my opinion- is a pediatric Neuropsychologist. failing that, a developmental pediatrician. then a psychologist, psychiatrist. If all of thsoe are not available, maybe see a neurologist. A neurologist is way down the list for me.
We took Peter to a neuro to rule out seizures, which he did. Then we went back to see if we could put a name to Pete's developmental delays. There was a foul-up with the scheduling and he wasn't expecting us and had not read the reams of material I had sent. Then after about three minutes with us, he told me Pete was a "gumby boy" and "very likely -almost definitely PDD". I left in disgust.
So a few years later, Peter was DXed HFA (which is a PDD). A few years after *that* Peter was DXed with Ehlers-Danlos syndrome (hence "gumby boy"). So the guy was right in the end. Maybe I am giving him a bad rap?
Hi there Jessie!
<<....his ped. said the neuro should be able to help me with r/o or in of asd...have any of you gotten a dx from a neuro?>>
I know that the Neuro I talked to about Jack (we haven't seen him yet) said that he does do dx's of ASD, including all the sub-types.
As far as the CD's go, I have no idea. Jack does a lot of things I don't see the other kids do (lining up his Teletubbies, fingers in his ears, rubbing head on carpet like a vaccumm, etc.) but didn't realize they were 'different' activities until I started watching other kids.
Good luck with the appointment!
Jessie mommy to Gabe(3.0 years/CAS,SID)
Visit my blog
Hi I've seen you post here a few times now.
Some neuro's will dx ASD (although ours didn't). Have you looked into finding a developmental ped or a neuropsychologist? We had Liam dx by the school in 1st grade, and Cian (4) by a psychologist phd who specialised in many neurological dx.
Up until Liam was dx ASD we had seen an OT, child psychiatrist, play therapist, neuropsychologist and developmental ped. He started with the sensory integration dx and then fine and gross motor delays, and finally ADHD. By the beginning of 1st grade it was obvious, we were missing something. Thankfully the school picked up the slack, and ASD was finally brought up.
With Cian we could see certain red flags earlier, although they are very different kids (toy lining, etc) Cian also has low muscle tone throughout, including his mouth and jaw, thus having a speech delay too (dysarthria).
My instinct (and I think yours too) is Gabe is ASD, but as he's little and you have been wandering from professional to professional and they are giving you individual dx's. You need someone who can make sense of all of these dx together.
eg: Separately Liam is HF ASD/ADHD/SID/Mood Disorder-NOS
In reality he has an Autism Spectrum Disorder and all of the above fit into that. Not all ASD kids have all of these, but they may have some or more. Cian has a dx of Aspergers/ADHD/SID. So you see ASD really is a large neurological disorder that happens to include many other dx. btw: apraxia would be a common enough co-morbid too.
Can you look into finding a psychologist who specialises in ASD's or even a developmental pediatrician. Where do you live and I can help you track down someone to give you a more clear picture.
Dee
We saw a neuro at age 4 but he only said that ds had a benign tic disorder and would grow out of it. It turns out he wasn't ticcing, he was stimming and he still does it today at age 9. A neuropsych diagnosed first PDD-DOS then Aspergers at age 7. I feel there was a lot of precious time wasted because he did not get early intervention.
My Aspie would spend hours dropping the lid to my spaghetti pot on the floor and watching it spin. He would stim wildly while it spun around and when it stopped he would pick it up and do it all over again. We were always amazed about how excited he got over spinning objects. If we were more knowledgeable about ASD's when he was smaller we would have pushed harder for a diagnosis. We just thought he was a difficult child. The earlier you can get him help the better it will be.
Jessie, I will say that the Dev Pedi we saw was able to "wrap it all together" in a way that the other experts could not.
Before that, Jack had been dx with Verbal Dyspraxia, Hypotonia, Sensory Issues (not SID), Expressive/Receptive Language Delay, Expressive Language Delay (singly), and Developmental Dyspraxia.
The Dev Pedi put all these under the 'provisional PDD-NOS' heading (and she didn't agree with the verbal dyspraxia....I think I had already posted that).
The main reason we are going to a Neurologist is to see if Jack had any issues from being an Emergency C-Section with the cord wrapped around his neck. Apgars were 9 and 10, so we really don't think so. But can't hurt to check.....
Personally, I don't like a neurologist for to r/o an ASD. ASDs are not caused my a specific brain defect. There is nothing you can scan -no definitive tests to run. ASDs are diagnosed my a full history and a clinical psych. evaluation. The best person to put it all together for you -in my opinion- is a pediatric Neuropsychologist. failing that, a developmental pediatrician. then a psychologist, psychiatrist. If all of thsoe are not available, maybe see a neurologist. A neurologist is way down the list for me.
We took Peter to a neuro to rule out seizures, which he did. Then we went back to see if we could put a name to Pete's developmental delays. There was a foul-up with the scheduling and he wasn't expecting us and had not read the reams of material I had sent. Then after about three minutes with us, he told me Pete was a "gumby boy" and "very likely -almost definitely PDD". I left in disgust.
So a few years later, Peter was DXed HFA (which is a PDD). A few years after *that* Peter was DXed with Ehlers-Danlos syndrome (hence "gumby boy"). So the guy was right in the end. Maybe I am giving him a bad rap?
Good luck no matter what you decide.
-Paula
visit my blog at www.onesickmother.com
visit my blog at www.onesickmother.com
I have looked into a developmental ped.
Visit my blog
Thank you all for the great advice...I will definatly use this to Gabe's advantage...
again thank you so much...
Jessie mommy to Gabe(3.0 years/CAS,SID)
Visit my blog
Hey, we are also in PA, and there is a guy at Geisinger in Danville who is the go to guy for autism in Central PA.