this would be ...

iVillage Member
Registered: 01-13-2008
this would be ...
7
Wed, 05-07-2008 - 2:41pm

concidered OCD wouldnt it ?? heres the scenerio...



ok so while playing outside with Rylee i sat down in

iVillage Member
Registered: 03-30-2005
Wed, 05-07-2008 - 4:19pm

Spectrum kids often play like that, too, it's hard to say. That made me chuckle, b/c my Claire ALWAYS shuts the door to her playhouse. Most kids would get excited to do something else and run out leaving it open, but oh no, not mine. If her sister leaves it open she goes back to shut it.

I can only imagine how hard it must be to be stuck without a diagnosis, only a whole bunch of symptoms. But (and hopefully I can say this without offending you, b/c I think you are doing a great job trying to find answers for her, and I really feel for your situation). Here it goes - you're driving yourself crazy. I've been there, a lot of us have been there. One of the best pieces of advice I got when we were in the process of diagnosing was from a fellow ivillager, who told me "your child is not a science experiment". We all do it in the beginning - is that a stim? Echolalia? Do other kids do that? It might take some time to sort out exactly what's different about Rylee. Try to concentrate on what her strengths and weaknesses are, and whether her therapies are addressing those. If not, then work on that. Keep a running list of behaviors that concern you, bring it to doctors appointments.

umm... OK, this isnt coming out how I'm wanting to say it, so maybe I should have just hit delete. I just know that for me, I am one giant ball of stress when I am analyzing everything Claire does, and it seems to me (although I do not know you, and maybe I'm way off) that you are doing that lately. Try to take a step back, make sure you are taking time for yourself, and make sure you are really enjoying her, because it is so easy to get caught up in the "other stuff" and all the worries and concerns. ASD, OCD, SID, anxiety - these things all overlap, so if her therapy is appropriate she is getting help even if you dont know what to call it. Try to set getting a diagnosis aside for a few months, and revisit it then. You are doing all you can for her - and doing a great job. Just my 2 cents. (and again, I hope I havent hurt you with what I'm writing, your little girl sounds so much like mine, and I feel like I can identify with so much of what you post). ((hugs))

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iVillage Member
Registered: 01-13-2008
Wed, 05-07-2008 - 7:40pm
ha no your totally right, i am driving myself crazy.. but mostly because i wanna make sure im doing the right things for her.. i seriously could use a vacation hahaha


iVillage Member
Registered: 11-28-2006
Wed, 05-07-2008 - 9:58pm

Well imo it does sound very OCD ish, or at least ritualist (is that a word? LOL)


I understand the over analizing, and worrying, and having it make you crazy.

iVillage Member
Registered: 04-28-2007
Wed, 05-07-2008 - 10:56pm

Liam at age 3 had what we called the texas two step. ie: when leaving a room (or entering) he would teeter back and forth like a bad episode of Dancing with the Stars. Think a shuffle dance routine back and forth. That btw was my big fat heads up, "helloo....something not right here" moment.

Now we deal with slightly different behaviours but similar reasons behind it. Its a coping mechanism and repetitive predictable motions keep Liam happy and calm(er). Lately its been in the form of echoing and what he calls daydreaming, ie: he talks to himself...alot! Always conversations with characters from his favourite movies or obsessions.

It is normal and your watchfulness is a sign you are a mom of a spectrum kid, no mater what the docs say:)

Dee

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iVillage Member
Registered: 11-28-2006
Thu, 05-08-2008 - 12:16am

You know Nicholas will do this.... He will enter a room, slap the wall twice, leave the room, slap the same wall twice again.


Chris, well he will have to go thru a ritual when I turn off the car.

iVillage Member
Registered: 09-27-2007
Thu, 05-08-2008 - 8:16am

(((hugs))) I had to chuckle when I read your post because Gabe does that same thing except he climbs up the slide turns around, jumps off, runs the same route in a circle, then goes back and does the same thing.

Jessie Mommy to Gabe (5.8 yrs old ASD, CAS, SPD) and Zane (1.10 yrs old ESD)

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iVillage Member
Registered: 03-30-2005
Thu, 05-08-2008 - 10:23am

We all drive ourselves crazy with this from time to time. I hope I didn't give you the impression that you shouldn't be posting your concerns, because this board is a great place to learn about what behaviors are problems and what you can do about them. I just got a sense from your posts that you are at "that place" where it is all you're thinking about, and that place sucks - we've all been there, but it sucks. (Of course, I could be wrong - I am only slightly more insightful that my spectrum kid sometimes)

I really hope you get some answers for her soon. I hear you about needing a vacation. And hey, if there is a vacation from autism where do I sign up? :)

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