Bad news on genetic u/s results =(

iVillage Member
Registered: 10-22-2009
Bad news on genetic u/s results =(
4
Tue, 12-28-2010 - 8:55pm

My midwife called tonight and said that the results from my genetic u/s showed a 1 in 53 chance of down syndrome.

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iVillage Member
Registered: 10-22-2009
Tue, 12-28-2010 - 8:56pm
woops wrong spot
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iVillage Member
Registered: 12-14-2008
Tue, 12-28-2010 - 8:59pm

Sandra, did you have the blood testing results too? they told me 1 in 85 even before u/s and blood just from my history and age (36). I would get CVS and/or amnio but i know of 2 close friends who got results like you and were scared to death, had amnios/cvs and everything was fine. both children are completely healthy. I hate the needless worrying..of course there's always a risk but most times for nothing --meaning "false positives".

Community Leader
Registered: 06-01-2004
Tue, 12-28-2010 - 10:58pm
Hi Sandra :) I am a lurker on the Aprl 2011 EC and just wanted to tell you my recent scary experience that turned out just fine. I am 38 and will be 39 when our baby girl is born.....she was conceived via IVF and after our nuchal u/s I was thrilled to see that everything looked fantastic - good nuchal measurement, nasal bone present etc. To my dismay, the blood work came back with a very different result and I was told that we had a 1 in 26 chance of Down Syndrome for our little one. I struggled very much with the decision to do the amnio or not. The CVS would have had to have been done the very next day and I was not prepared to make the decision that fast. We did end up doing the amnio - I decided the day before that I would go - and it was not so scary as I imagined it would be. I spent the next 2 days on bedrest and then had to wait a loooong 2 weeks to get our results. I felt in my heart that there was nothing wrong with our baby but could not imagine waiting until April to know for sure. We would not have terminated but I certainly struggled within myself as to what it would mean for our family etc. if things had gone the other way. It was a tough time but I always kept it in my mind that our odds were better then not that she had the regular number of chromosomes. 1 in 53 sounds very, very scary but if you look it at like 52 out of 53 babies with those results will be fine then it feels less so. Our chances were 96% in our favour so yours are even better by quite a bit........If somebody gave me those odds in the Casino at Vegas, I would feel not too bad. Anyways, I wish you luck with your decision and the agony I know you are feeling right now. It was a very rough 5 or so weeks and I am glad we are through it now. I hope the same for you on the other side - until then, try hard not to panic, keep positive as much as you can, and let me know if I can help in any other way. It is scary and shocking to deal with.
Big hugs, Jasmine
CL - TTC and BF'ing Board
iVillage Member
Registered: 07-16-2009
Wed, 12-29-2010 - 10:29am

I'd be a little more concerned about the "other symptoms" but bleeding is hardly an uncommon thing and remember that the test is just the odds.