May 2013 Chit Chat

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Registered: 12-15-2008
May 2013 Chit Chat
4
Wed, 05-01-2013 - 7:29am

Happy May Day!  

I'm so glad to see some of you coming back and posting here!!!  It was getting lonely here for a while, and I thought about just giving up.  I kept thinking, if people psot I will keep going but if there's no posts (besides my own) then I'll hang up my hat.

I think spring may be trying to make an appearance around my area for the next 2-3 days - it sure took long enough for it to get here though.  

My kiddos are doing well and keeping me very busy (when don't they?).  Jenna did very well in Speech Therapy yesterday she repeated over 10 different words and spontaneously (with out help or prompting) said "More"  which has been our target word for 3 months now.  She will repeat words if we say them first, but has great difficulty in saying them without our prompting and help.  She also tends to not retain words that she has previously used.  She used to say "apple" all the time and now can't/won't say it.  So we are also incorporating some sign language for times like this (at least her teachers and I are, not sure DH is following through).  She also clams up big time around strangers or if I enter a session after it has already started, so I hope she's not heading down the select mutism road - she has such a terrific and goofy personality and it would be terrible if we were the only ones to see that side of her.


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Registered: 12-15-2008
Fri, 05-10-2013 - 9:01am

Jenna is now consistently saying "Mommee"!  Such music to my ears.  She even called for me during the night the other night (not so musical) - usually she calls for Daddy because she can't remember how to say mommy.

We are also workin on her recognizing and trying to say other family members names.  She says Daddy and Heidi (the dog's name) very well, Jesse comes out as eh-ee, Josh isn't around her enough for her to say his name.  But the funniest thing is when you ask her what her name is, she pats her chest and says "mee".  I think it's a carry over from the signing the therapists have had us using for "give me".  


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Registered: 12-15-2008
Sun, 05-12-2013 - 1:30pm

Happy Mother's Day to all our Sunshine Sweetie Mamas out there.  I hope you all have a great day, and that your kids and DH's do something special for you.


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Registered: 02-21-2010
Thu, 05-30-2013 - 2:41pm

Sorry...I have been gone for quite a while and just got back on to see how everyone was doing. I have a question about your DD's speach which I'm sure you have already talked about. When did they decide to send you to a specialist or did you seek one out on your own? Reason is that Nicholas really only has about 10 words that he speaks...hi, mama, hot and da being the top 3. So far our ped. and a cousin that is a speach pathologist said not to be worried quite yet. He babbles and tries to carry on a conversation with you he just doesn't seem to be interested in talking. You can tell him he can't go outside without shoes on and he will go get his shoes and socks and bring them to me to put on so he understands everything and can do complex tasks correctly. I think his problem is that if you don't understand what he is stying to say the 1st time he just goes and does it himself. He can open all the doors, go up and down the stairs as well as open the fridge and get his juice. He also has 2 big sisters (16 and 12) that do whatever he wants. I would really like for him to be talking by his birthday next month as I am starting to get concerned!! My DD's were both talking in phrases by now...it also concerns me because I had him so late in life compared to the others...at 39 I wan't over the hill but it still makes me cautious to issues. He is on schedule with all other developmental milestones though.

Miki :)

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Registered: 12-15-2008
Fri, 05-31-2013 - 8:51am

Hi Miki!  So glad you stopped by here again!  It sounds like your Nicholas is doing quite well, but I can understand your concerns about his speech progress.  I've always been told that boys speak later and less than girls (although that certainly was not the case with my kids at all).  I would mention your concerns to your Dr. the next time you go (2 year visit should be coming up soon), and see what he/she says.  

As for Jenna, since she has a genetic disorder she is in our state (NJ) health database and her progress is supposed to be regularly monitored to make sure she stays on track with her peers.  Last year she was showing signs of difficulty with walking and had stopped making ANY sounds other than crying, grunting, and open vowel sounds (ah, i & e) - no babbling at all.  She was thoroughly checked by the pediatrician and her geneticist to rule out any physical/genetic causes.  They did x-rays, blood work (genomes) and a complete audiology work up.  There were no unusual findings and the drs. didn't know where to go from there - wait and see (ugh!).

But then the state called me to find out how she was doing and I mentioned these concerns. They brought in the Early Intervention team/process and did a full evaluation of her within a few weeks (normally it can take a few months to do).  They found she had significant developmental delays and she started receiving developmental therapy once a week (right in our home).  After not making too much progress in about 6 months time, a decision was made to switch therapists and do a speech evaluation (which obviosly found her severely delayed and in need of services).  Now she gets 2 hours of Developmental therapy and 1 hour of Speech Therapy every week.  What a difference it has made!  But most of her big progress has been in just the last month.  And her therapists are convinced that at her annual review it will be determined that she is no longer qualified for services.

Like Nicholas, Jenna understands EVERYTHING.  She will even go and do things that we are asking Jesse to do if he doesn't act quickly enough.  She can now dress her self - including zippers! She is pretty self sufficient these days.  She would also give up on communicating when we would push her or not understand.  For example, one of her first words was apple, so whenever she wanted one we would try to make her say it. Rather than say it she would just keep pointing and grunting at it, and then finally just give up and walk away.  We have since learned that she is having "motor control" issues where she knows the words she just can't get her mouth to make them - especially when under pressure.  This still remains true for her newer words - she cannot say them when she feels pressured.  But when she thinks we are not paying attention then she has less trouble.

Now to get to this point we started out with just a few signs (more and give me).  We were to give her small amounts of her foods and make her sign for more.  Once she got the signing down we were to encourage her to start saying the word more.  At first, we were to accept any attempt at the word (no matter how far off it was) and to praise her for "good talking."  Once she started saying the word consistently the signing was dropped.  She has figured out haw to say so many more words now through constant review with flash cards, toy objects,and iPad apps (there are a bunch of Speech apps, as well as toddler apps - she likes Old MacDonald).  She even surprises us with words we weren't/aren't even trying to work on.  Now one of our goals is to work on improving her articulation of these words (she tends to leave out beginning and middle consonant sounds).

I hope this helps you in some way and gives you some things to try with Nicholas.  One of the toughest things to do is to not just automatically give him what you (or the other family members) know that he wants, but to purposely make him ask for it.  They advised us to put everything she liked high up out of her reach so that she would have to ask for it, and to not just give things to her.  But since all she every likes is what her brother currently is playing with that was a much more difficult task.  I've also found that the dreaded "binky"  prevents her from even trying to speak.  DH was constantly giving it to her even when she didn't need it.  I only let her have it at bedtime or it she's really in distress, but he's with her all day not me.  But I keep telling her the Binky fairy is coming when she turns 2 (which is Monday!).

Let us know how Nicholas does.


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