Could it be tongue tie?

iVillage Member
Registered: 05-22-2011
Could it be tongue tie?
6
Sun, 10-30-2011 - 7:08am

My son is now 7 and a half months old and we've had difficulty with nursing since the beginning. (You can read the background story here http://forums.ivillage.com/t5/Newborn-to-6-mo-Questions/Need-some-advice-for-nursing-my-almost-10-week-old/m-p/117498927/message-uid/117498927#U117498927)

iVillage Member
Registered: 09-21-2011
Tue, 11-01-2011 - 12:51pm
Do you have an IBCLC near you? I believe a trained IBCLC would be able to help you look at the baby's latch and mouth for possible lip tie. The woman I worked with checked every nursling she worked with if there were concerns about difficult latch.
iVillage Member
Registered: 05-22-2011
Tue, 11-01-2011 - 3:07pm

There used to be one at the hospital but they laid her off. I think there might be others around but I can't afford to pay out of pocket and insurance will only cover the hospital-based lactation services. Plus he's already 7 and a half months old, I'm not sure if that makes a difference in who we see.

iVillage Member
Registered: 09-21-2011
Tue, 11-01-2011 - 4:45pm
Some pediatric dentists will also evaluate and treat tongue or lip ties.
iVillage Member
Registered: 12-21-2009
Mon, 11-07-2011 - 4:55pm

It might be worth checking with the LC, LLL leader or Ped (or all of them) to see if they can make a referral to an ENT or dentist/oral surgeon who is very experienced with frenulum issues and breastfeeding.

Definitely the tight labial (lip) frenulum is more rare than a tight linginal (tongue) frenulum so if the LC you saw was not very experienced may not have picked it up.

Additionally there can be a restriction of the posterior linguinal frenulum that is also more difficult to diagnose.

You might need to travel to a large city to find someone who can help. Where (in general) do you live?

Has your baby always gained weight ok?

Warmly,

Kathy Kuhn IBCLC

iVillage lactation consultant

and Grammy to Brennan, Elias, Elianna, Tahlia, Makenna, Maura and Silas

Kathy Kuhn IBCLC ivillage lactation consultant Grammy to Brennan, Elias, Elianna, Tahlia, Makenna, Maura, Silas, and Charlotte

iVillage Member
Registered: 05-22-2011
Mon, 11-07-2011 - 6:31pm

I actually asked the LLL leader about it last week and she is going to give me the number of another LLL leader who's baby had a posterior tie and got it fixed recently.

His weight gain has always been on the low side, we were supplementing every day, but stopped recently when I got laid off work since I'm not able to breastfeed all the time (and it really seems like all the time!).

He was born at 6 lbs 3 oz (I was pumped up with lots of fluids), born at 35 weeks 6 days.
Lowest weight was 5 lbs 9 oz
At 1 week he was 5 lbs 13 oz
1 month 6 lbs 8 oz
2 months 9 lbs even
4 months 12 lbs even
5 months 13.1 lbs (at this point I weaned him off the supplements)
6 months 13.2 lbs (started giving a minimal amount of supplements again because of the slowed weight gain)
7 months 14 lbs (weighed at home, weaned off the supplements again)

I plan to have him weighed again this week at the doctor's office. He's always been a really slow eater. Lately he's been nursing practically all the time. I was hoping by almost 8 months, he'd have gotten a little quicker and/or spaced out his feeding somewhat, I feel like he's still a newborn.
I live just outside Bangor, Maine, not sure if there's really anyone around here, but hopefully that LLL leader will get back to me.

iVillage Member
Registered: 12-21-2009
Mon, 11-07-2011 - 8:07pm

Sounds like the LLL leader who had the baby with the posterior tongue tied will be your best contact to help you find someone who can help evaluate and treat if it's needed.

I had heard of someone in New Jersey who is experienced with posterior tongue tied and was going to try to get their contact information if you were anywhere near NJ.

Certainly the slow gain could be related to tongue tied. Hopefully if that is the issue you can get it resolved.

Keep us posted

Warmly,

Kathy Kuhn IBCLC

iVillage lactation consultant

and Grammy to Brennan, Elias, Elianna, Tahlia, Makenna, Maura, and Silas

Kathy Kuhn IBCLC ivillage lactation consultant Grammy to Brennan, Elias, Elianna, Tahlia, Makenna, Maura, Silas, and Charlotte