A year ago

iVillage Member
Registered: 09-01-2004
A year ago
7
Fri, 06-10-2011 - 1:55pm

A year ago right now we were in pure hell. We were stuck in the hospital with Wyatt hooked up to and being pumped full of all kinds of crap that we didn't want. They took what seemed like gallons of blood from a newborn baby. And now a year later we still have no real answers. The best they can offer us is "there are red flags" but no he does not have the metabolic disorder VLCAD or any other variation of it. And yet they will not give him a clean bill of health. *sigh* 

Photobucket
iVillage Member
Registered: 05-28-2011
In reply to: amy3lynn3
Sun, 06-12-2011 - 2:13pm

I hope things are looking bettter for Wyatt. It must be horrible to go through what you are going through.

iVillage Member
Registered: 02-24-2011
In reply to: amy3lynn3
Mon, 06-13-2011 - 9:40am
Oh, Amy.... how frustrating! I can't even imagine the worry you've been dealing with. If you don't mind me asking, what are the "red flags" they are talking about? Weird that they can't give a diagnosis but refuse to give him a clean bill of health either. I'm so sorry you've been dealing with this for so long.
Hope, Mommy to Spencer Expecting Baby #2 09/17/12
iVillage Member
Registered: 09-01-2004
In reply to: amy3lynn3
Mon, 06-13-2011 - 10:01am
I am not really sure. They just keep saying there are "red flags" in the testing that hints to the possibility of a metabolic disorder. But the test is not positive. I just think they don't want to admit that maybe they screwed up.
Photobucket
iVillage Member
Registered: 10-25-2008
In reply to: amy3lynn3
Mon, 06-13-2011 - 6:55pm

omg STILL?

Photobucket
iVillage Member
Registered: 09-01-2004
In reply to: amy3lynn3
Tue, 06-14-2011 - 12:16am
I have a strong feeling that on Wednesday they will just say that there are no new notes in his file. That is what they said at his 9 month appointment.
Photobucket
iVillage Member
Registered: 02-24-2011
In reply to: amy3lynn3
Tue, 06-14-2011 - 9:49am
Okay... that would just tick me off! LOL! Have you thought of getting a second opinion or maybe changing to a new doctor? How frustrating for all of you!
Hope, Mommy to Spencer Expecting Baby #2 09/17/12
iVillage Member
Registered: 01-27-2006
In reply to: amy3lynn3
Wed, 06-15-2011 - 5:41pm
Ugh! (((hugs))) Focus on the good. <3
Photobucket