links to learn more...

Avatar for purple31
iVillage Member
Registered: 03-06-1998
links to learn more...
Wed, 10-06-2010 - 7:21am

Here are some helpful links to learn more ---

Please remember these are informational sites and not all hemangiomas are the same. Some of the pictures are graphic and show worst-case scenarios --- only a small percentage of hemangiomas grow to the extent of some of these pics. - National Organization of Vascular Anomalies --- You'll find most everything you need to know here! Includes specialist lists.

Vascular Birthmarks Foundation site - or Dr Waner's site - (****very good sites, can help with referrals to doctors near you****) (nice site w/ info for PWS and AVM's plus online support groups) ****Excellent site!**** - lists places/doctors to see!' personal homepage for their son who has had 26 laser treatments for Port Wine Stain) A man's perspective on his journey and treatments for PWS as an adult. Inspiring!!! (giant nevi/nevus site) (this is where we went with Melissa, NYU Medical Center's Vascular Anomaly program) (our lead dr from Conference, Dr Blei) (Melissa's plastic surgeon, Dr Zide) Children's Hospital, Boston (Dr Mulliken) - Neurofibromatosis info (multiple cafe-au-lait spots can be an indicator of NF) - Children's Hospital, Los Angeles (Dr Reinisch)

Links to purchase "Birthmarks: A guide to Hemangiomas and Vascular Malformations" - (thanks "tristenpitt" for the suggestion to have this info added!) or

More info about the book --- Birthmarks: A Guide to Hemangiomas and Vascular Malformation. Written by Linda Shannon, MS, and Connie Marshall, RN, MSN, with Milton Waner, MD. Published by Women's Health Publishing. 888-235-7947. $18.94 plus $3.50 shipping. This 171-page paperback includes the latest treatments, support information, and before and after photos for anyone dealing with facial birthmarks. Excellent resource!