links to learn more...

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Registered: 03-06-1998
links to learn more...
Wed, 10-06-2010 - 7:21am

Here are some helpful links to learn more ---

Please remember these are informational sites and not all hemangiomas are the same. Some of the pictures are graphic and show worst-case scenarios --- only a small percentage of hemangiomas grow to the extent of some of these pics.

http://www.novanews.org - National Organization of Vascular Anomalies --- You'll find most everything you need to know here! Includes specialist lists.

Vascular Birthmarks Foundation site - http://www.birthmark.org or Dr Waner's site - http://www.birthmarks.org (****very good sites, can help with referrals to doctors near you****)

http://www.birthmarks.com (nice site w/ info for PWS and AVM's plus online support groups) ****Excellent site!****

http://www.geocities.com/HotSprings/Spa/7568/vascular.htm - lists places/doctors to see!

http://www.alltix.com/pws/(parents' personal homepage for their son who has had 26 laser treatments for Port Wine Stain)

http://www.geoffspws.com/livingwithPWS.htm A man's perspective on his journey and treatments for PWS as an adult. Inspiring!!!

http://www.nevus.org (giant nevi/nevus site)

http://www.nyuchildrens.org/patientcare.html#hemangiomas (this is where we went with Melissa, NYU Medical Center's Vascular Anomaly program)

http://www.med.nyu.edu/people/F.Blei.html (our lead dr from Conference, Dr Blei)

http://www.hemangioma.com (Melissa's plastic surgeon, Dr Zide)

http://www.childrenshospital.org/clinicalservices/Site1964/mainpageS1964P8sublevel9.html Children's Hospital, Boston (Dr Mulliken)

http://www.nf.org - Neurofibromatosis info (multiple cafe-au-lait spots can be an indicator of NF)

http://www.hopeforkids.com/body_hemangioma.html - Children's Hospital, Los Angeles (Dr Reinisch)

Links to purchase "Birthmarks: A guide to Hemangiomas and Vascular Malformations" - http://www.birthmark.org/book.htmhttp://www.birthmarks.org/parents/index.shtml (thanks "tristenpitt" for the suggestion to have this info added!) or

More info about the book --- Birthmarks: A Guide to Hemangiomas and Vascular Malformation. Written by Linda Shannon, MS, and Connie Marshall, RN, MSN, with Milton Waner, MD. Published by Women's Health Publishing. 888-235-7947. $18.94 plus $3.50 shipping. This 171-page paperback includes the latest treatments, support information, and before and after photos for anyone dealing with facial birthmarks. Excellent resource!