Vinchristine for treatment Anyone????

iVillage Member
Registered: 02-21-2012
Vinchristine for treatment Anyone????
6
Tue, 02-21-2012 - 8:16am

My son has been have his birthmark treated off and on since 5 months,,

Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008
Tue, 02-21-2012 - 5:53pm

Welcome to the board, ruthless009 :)

Where is your son's birthmark located? I was curious on why they say surgery isn't an option. I really hope the treatment works for him.

iVillage Member
Registered: 02-21-2012
Wed, 02-22-2012 - 7:38am

Well it emcompasses the inside of his left cheek, under his tongue and an area of if throat.

Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008
Wed, 02-22-2012 - 11:37am
I can see why they want to try meds before surgery, that looks like it would be very tricky to get out. I so hope that Vinchristine works on it, please keep us posted.

Avatar for purple31
iVillage Member
Registered: 03-06-1998
Thu, 02-23-2012 - 9:51am

Hello and welcome!

What an adorable little guy you have there!




iVillage Member
Registered: 02-21-2012
Sat, 02-25-2012 - 6:13am
Yes at least the best in my area, she is sending his info out to Boston which seems to be one of the best in nation in dealing with these. We're currently at Devos Children hospital in Grand Rapids. I check into cs motts at uof m but doesn't look like they do much with this. His port and first treatment was thrusday and everything went well. hopes he tolerates it well. just have to wait and see
Avatar for purple31
iVillage Member
Registered: 03-06-1998
Sat, 02-25-2012 - 9:43am

Waiting's always the hardest part.