First Kalydeco update from my friend

Avatar for adamsmomplus2
Community Leader
Registered: 09-09-2000
First Kalydeco update from my friend
3
Wed, 02-22-2012 - 10:18am

My friend's dd had a clinic visit yesterday. She's been on Kalydeco for about a week and her PFTs are up from 46% previously to 53%. This is great for her since hers have been steadily declining for awhile. She also says that her dd's energy level is way up and she doesn't just want to sleep all the time. So far, so good!

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Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008
Wed, 02-22-2012 - 4:47pm
That sounds really good, hope they continue to see improvement!

iVillage Member
Registered: 07-17-2005
Wed, 03-07-2012 - 4:30pm

That's great!

Avatar for adamsmomplus2
Community Leader
Registered: 09-09-2000
Wed, 03-07-2012 - 4:38pm

Her O2 sats are up in the high 90s (from the low 80s) now, too.

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