How much do you think CF would be on your radar?
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|Sat, 02-11-2012 - 10:31pm|
I got an email today from an old HS friend today. A friend of hers had just had genetic testing and found that both she and her dh were CF carriers. They do not yet have any children and this news is making them evaluate whether they want to/should have bio children. My friend sent me an email to ask if I would call and talk to this woman about CF. Of course I called her. We had a nice conversation, and, thanks to the ladies here, I was able to give her many perspectives, not just my own. She is still evaluating her options and working on what is the best course for her family.
This made me think, though, how much was CF on your radar before you had a child with CF? I know I had heard of it way back when I was a kid (I think I remember seeing the Alex Deford movie on TV). But, as an adult, not much. I had a friend at church whose dd has CF, which was just a few months before we learned about Sarah. Then, right after Sarah moved in with us, another lady at church had temporary custody of her nephew with CF. I don't even know if I would have caught on to that if it hadn't been for Sarah.
For me, if I didn't have Sarah, I honestly don't know if I would really think about CF at all. I don't even know if I'd have heard about treatment advances or anything much. What about you?