I just read about a new CF book

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Community Leader
Registered: 09-09-2000
I just read about a new CF book
2
Fri, 08-17-2012 - 5:55pm

I saw an article about a woman with CF who is 52 and has written a book about her experience. It is "Dancing in the Storm" by Shelly Maguire. It's available on Amazon. Has anyone read it?

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iVillage Member
Registered: 07-17-2005
Mon, 08-20-2012 - 6:32pm
No, I haven't. I actually try to stay away from books and videos and the like about people with CF. Emily is really healthy and my philosophy is "Ignorance is Bliss" One time, I somehow started watching the first 30 seconds of this video on youtube about a girl who was really sick with CF and I couldn't get that image out of my mind. I feel like we are doing as much as we can for Emily, so knowing about her future would only make me worry. However, the fact that she is 52 and still alive is very encouraging!
Avatar for adamsmomplus2
Community Leader
Registered: 09-09-2000
Tue, 08-21-2012 - 12:16am

Her age is what appeals to me. 52 isn't "old" but it's a long life, if that makes sense. The book appeals to me because she's really "lived" and it intrigues me what her treatment schedule might be like so I have an idea what to expect as Sarah gets older.

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