Interesting new website

Avatar for adamsmomplus2
Community Leader
Registered: 09-09-2000
Interesting new website
2
Thu, 11-01-2012 - 8:09pm

CFF and Johns Hopkins have launched a new website, CFTR2 which discusses CF mutations (and combinations) and gives data about symptoms and severity of symptoms based on mutation combinations. I've been poking around for a few minutes, it's not super in-depth, but has some interesting information.

Here's the link:

http://www.cftr2.org/index.php

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iVillage Member
Registered: 07-17-2005
Mon, 11-05-2012 - 6:17pm
Thanks for posting! It's pretty interesting, but takes a minute to figure out how to navigate!
Avatar for adamsmomplus2
Community Leader
Registered: 09-09-2000
Tue, 11-06-2012 - 2:19pm

I agree. It's not particularly intuitive. I took the user survey and conveyed this. I thought it was particularly interesting that it told which mutations had pancreatic insufficiency. I just assumed that was a given. Always more to learn, I guess.

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