No clinical trial for us :(

Avatar for adamsmomplus2
iVillage Member
Registered: 09-09-2000
No clinical trial for us :(
3
Wed, 04-03-2013 - 12:59pm

I called about the Kalydeco VX-809 trial. Our clinic is only doing people over 12. Sarah is 10. So, no trial for us. Bummer.

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Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008
Fri, 04-05-2013 - 2:57pm

I'm so sorry, that totally stinks :(

iVillage Member
Registered: 10-12-2010
Tue, 04-16-2013 - 4:22pm

It is a bummer.  Apparently, it's not just your clinic, but the actual trial, that's restricting the age to over 12.  Paige is turning 12 in June, but by then it might be too late to get her in.

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Avatar for adamsmomplus2
iVillage Member
Registered: 09-09-2000
Tue, 04-16-2013 - 4:34pm

Nice to "see" you, Monica. Have you contacted your clinic to see if they know when their trial is starting? I'd hate to see Paige miss it by just a few weeks.

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