Paige Update

iVillage Member
Registered: 10-12-2010
Paige Update
8
Fri, 12-30-2011 - 4:06pm

Hi everyone ~

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Registered: 09-09-2000
In reply to: mla13
Fri, 12-30-2011 - 5:03pm

Oh my goodness, Monica, how crazy. I'm sorry Paige is back in the hospital. It must be so hard to be so far from home to be in the hospital so you can't even run home for a quick errand or break. Have they given you any idea why her numbers are so up and down? That seems strange to me, but then Sarah's numbers typically stay in the same general range, will go down about 10 during an exacerbation then back up to her normal range. However, that normal range goes down by a point or two every year.

Hang in there.

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Registered: 07-17-2005
In reply to: mla13
Wed, 01-04-2012 - 4:16pm
I'm sorry Paige is in the hospital. I can't even imagine how stressful it is. Hopefully, her pft's will stay up and she will keep the weight on. I'm sure running will help her pfts, but hopefully you can get her to eat enough to compensate for it.

I'm glad you are going to be on more. I'm trying also!
Crissy
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Registered: 10-12-2010
In reply to: mla13
Fri, 01-06-2012 - 8:12pm

So...we're going home Monday and Paige had her follow-up PFT today.

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In reply to: mla13
Sat, 01-07-2012 - 1:54pm

Oh geez, that is so frustrating, Monica. I can't imagine all that treatment and stress for no significant change. ARGH!

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Registered: 10-12-2010
In reply to: mla13
Sat, 01-07-2012 - 4:16pm

When the attending doctor did rounds today, I mentioned this.

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In reply to: mla13
Sat, 01-07-2012 - 7:04pm

Ok, that sounds so frustrating to me, Monica. Maybe I'm reading it wrong, but it sounds like you expressed concern about not much change and it's just being blown off or excused. Am I reading that right? All they EVER talk about with Sarah's PFTs are FEV1, so I'd have to go look at her printouts to tell you any other numbers. They do comment on her small airway clearance, mostly as a "well it went up so she responded to the Albuterol," but that's about it.

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Registered: 07-17-2005
In reply to: mla13
Tue, 01-10-2012 - 5:31pm

Sorry Monica....hopefully things will get better.

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Registered: 10-12-2010
In reply to: mla13
Fri, 01-13-2012 - 2:19pm

It's interesting to me that different clinics focus on different things.

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