Progress in CF Research

Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008
Progress in CF Research
2
Thu, 02-07-2013 - 4:42pm

My friend shared the following link on Facebook.  From what he said, I'm assuming that their new son also has CF (their daughter is just over a year was diagnosed shortly after birth).  I've mentioned her on here before, and was saddened to see that they are facing the same with the baby.  This video from the North American CF Conference does give you a lot of hope, though, on how far they've come with CF research:

http://www.cff.org/aboutCFFoundation/Publications/connections/January2013/CF-Researchers-Share.cfm

Avatar for adamsmomplus2
Community Leader
Registered: 09-09-2000
Fri, 02-08-2013 - 3:29pm

I am always blown away by how far things have come. Sarah will turn 10 next week. 30 years ago, she would likely not have lived this long. Is that good enough? No way! But the strides in research and treatment have been miraculous, IMO.

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iVillage Member
Registered: 07-17-2005
Thu, 02-14-2013 - 5:10pm
I totally agree...not good enough. I am so hopefully though that Emily will be able to live a long life. I figure since she is doing so great she can make it to at least 50. I'm pretty sure the VX-770 and VX-809 combo trial is going to start soon in children. Hopefully that will work!