Do your family a favor and do not post about a birth defect

iVillage Member
Registered: 08-01-2013
Do your family a favor and do not post about a birth defect
Thu, 08-01-2013 - 6:18pm

Apparently there are groups (public schools, churches, relatives) that will go after these children to make sure they will not become members of our adult society.



Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008

Hi Shirley.  Can you give us more details about what you are going through?  (((HUGS)))

Community Leader
Registered: 01-29-2002

Hi Shirley.  Is there something we can help with?  I have not heard of this.  I've been posting about my grandson's heart defect since it was found in 2001.  I know that in all posts on the Internet about anything, you have to be careful who you are talking to and what kind of information you are disclosing.  I have to admit that I probably was not as safe as I should have been when I first started.  However, I have received tremendous support from my friends in the world of chd.  I am lucky in the fact that I have been able to keep in contact with the core group of people I met when I first joined this board.  I've met some, talked on the phone to others, and enjoyed hearing about some who are fortunate enough to visit each other.   If you can, please post with more information.  Thank you.