Getting the word out about organ donation

Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008
Getting the word out about organ donation
2
Wed, 02-06-2013 - 5:15pm

I wanted to pass along this article from the Huffington Post about children who are waiting for a heart transplant, they interviewed a parent who described what the wait is like: 

Navigating the experience of waiting for a heart donation is a complex time for patients and families, and Blakey said that she realizes "how deeply wrong" it was to have thought so openly about how and when another family might suffer a tragedy so her son could live. But such desperation is something many parents would likely feel in her situation. The exhausting waiting process, the "torture" that is "actually watching your son die in front of your eyes," Blakey said, is an experience that can hardly be put into words.

Read more: http://www.huffingtonpost.com/2013/02/05/infant-heart-transplant_n_2594147.html?utm_hp_ref=parents&ir=Parents

She talks in the article how important it is to get the word out about organ donation, because the need is so great.    It's a hard subject to talk about, but one that needs to happen more.  

What do you think?

Community Leader
Registered: 01-29-2002
Wed, 02-06-2013 - 5:40pm

As you know, one of my heart friends has a son who just received a new heart.  I can not believe how much strength and courage she showed throughout the long process.  I don't know that I would have behaved equally as well.  Many times I would visit her carepage to offer encouragement and support and it would be me who would walk away encouraged instead.  I am going to contact her and see if she will post on this thread.  She also has many connections to people who have children who are in need of an organ. 

My dad died in 1959 from kidney disease.  Transplantation of organs was only beginning.  My aunts and uncles all asked if they could donate a kidney.  Unfortunately, the doctors told them that they did not know if it would work and the doctors thought the siblings would only be throwing their kidney away.  A neighbor recently donated a kidney to her brother.  It made me think about a lot of "what ifs" in regard to my dad.  I had just had my 6th birthday when he passed away.  He was 36 years old.

Community Leader
Registered: 01-29-2002
Wed, 02-06-2013 - 5:40pm

As you know, one of my heart friends has a son who just received a new heart.  I can not believe how much strength and courage she showed throughout the long process.  I don't know that I would have behaved equally as well.  Many times I would visit her carepage to offer encouragement and support and it would be me who would walk away encouraged instead.  I am going to contact her and see if she will post on this thread.  She also has many connections to people who have children who are in need of an organ. 

My dad died in 1959 from kidney disease.  Transplantation of organs was only beginning.  My aunts and uncles all asked if they could donate a kidney.  Unfortunately, the doctors told them that they did not know if it would work and the doctors thought the siblings would only be throwing their kidney away.  A neighbor recently donated a kidney to her brother.  It made me think about a lot of "what ifs" in regard to my dad.  I had just had my 6th birthday when he passed away.  He was 36 years old.