Anna's Story

iVillage Member
Registered: 12-11-2011
Anna's Story
2
Sun, 12-11-2011 - 3:48pm
Hi Everyone, My daughter Anna was born in 2001 with TA, HRV,ASD, VSd's she had her Glenn at 3months, her Fontan when she was 2. Some of you may remember us, when she was small I posted here frequently under the name Pam.t . Anna is 10 now and an extremely happy and healthy little girl. When we found out about her defect at our 20 week ultrasound I spent hours online looking for stories of older children with similar defects to hers, trying to get some idea of what we could expect. I didn't find many of older children but I did find this board and the lovely parents here who were so willing to share their experiences and knowledge with us, for that I will be eternally grateful. Everyday there are new families being told the baby they are expecting has a chd, like us I know they will spend hours online looking for information and positive stories so we made this video for them, feel free to share it anywhere and with anyone. River http://www.youtube.com/watch?v=_tyJuub9cYI
Community Leader
Registered: 01-29-2002
Wed, 12-14-2011 - 11:08am
Hi Pam. If I remember correctly, you had a very good website about Anna didn't you? Thanks for posting the video. Since you and I joined this board, there are a lot more support groups out there, especially ones that are actual physical groups that meet. There is now a group in Houston that works with Texas Children's kids that would have been very helpful when Nick's defect was found. Thank goodness for this board though because it was one of the few around. Most of the kids that were around when I first joined are doing so well now and growing up into teens or almost teens. Actually, there are some young adults too. It is always good to hear from some of our earlier members and catch up on how their kids are doing. Thanks again for posting the video.

Cheri, grandmother of Nicholas (Nick) Mathews, 15 years old, OH May 2001, partial canal defect
Community Leader
Registered: 01-29-2002
Wed, 12-14-2011 - 11:16am
Forgot to mention, that is a great video. I loved it.