Hypotonia..looking for other parents to talk to

iVillage Member
Registered: 04-03-2013
Hypotonia..looking for other parents to talk to
1
Wed, 04-03-2013 - 7:57pm

Hello everyone I am a mother of two and my second child who will be a year on April 18th has hypotonia.  We are not sure what the cause is and we are currently going through many tests and specialist appointments.  She is 11 1/2 months and she can sit up independently.  She doesn't attempt to move much.  She doesn't role over or try to crawl or put any weight on her legs.  Gracelyn also has other minor annomolies on her body, mostly her left side (like smaller baby finger, skin condition on her head etc...).  Our latest news is that they think it is genetic and we are waiting to see the geneticist.  I find the hardest part is not having other people to talk to.  We feel very alone in trying to find people who understand.  I'll end there because I am not sure if I am doing this right.  I hope to be able to talk and connect with other families who have children with hypotonia.

Thanks

Amber

iVillage Member
Registered: 02-10-2012

Hi Amber! My name is Steph and my daughter is almost 20 months old. Does your other child have any issues as well, or is it just your youngest? I look forward to talking with your further.