2 possibly 3 of my children have Hypotonia.

iVillage Member
Registered: 10-16-2011
2 possibly 3 of my children have Hypotonia.
Sat, 11-05-2011 - 6:29pm

Well it is official I have so far 2 out of my 3 children with Hypotonia. Both births were normal . Both children didn't show any problems until toddlerhood . Both children have needed Speech and OT therapy within the public school system. Both children showed lack of growth . Our peditrician was waiting to see if things improved before sending us to a nerologist. When our son(age 11 at the time) started crying everyday about his muscles hurting and lack of strength in his legs and hands we really became concerned.

When my son was tested last year he was 3-4 years behind in both muscle control and physical stamina for children his age. We were

iVillage Member
Registered: 12-11-2006
Tue, 11-08-2011 - 6:06pm
I'm sorry but I don't have an experience with older children showing hypotonia symptoms; the only thing that comes to mind is to see neurologists and later on genetic doctor because all of the children share the condition; I would go and set up the neurologist visit right away, if you haven't visit this specialis yet, since sometimes it take up to 6 months to get the appointment;
Avatar for jessthemom
iVillage Member
Registered: 03-26-2003
Fri, 11-11-2011 - 1:57am
Welcome to the board MsCarnahan315. My name is Jess, my hypotonic kiddo is only 21 months old, but I really agree with Ania. If it were me and all 3 kids are displaying some of the same symptoms I would be asking for a neurological and genetic work to figure out if their isn't the same factor causing the issues. OT is great if you have access to it on a regular basis. I will be praying that you get into the needed doctors before you expect to be able to. I know that it seems like this is taking over, because it is, I will be praying that you find a lot of support and help quickly in your area. Do you live in rural setting or a populated area? We live in rural Missouri and that plays havoc on finding services sometimes. Right now we get all our therapies through Early Education Intervention Services (First Steps), so I am already figuring out where we can get support services as we transition into preschool. I can't believe you school district is being so fussy about a diagnosis.

We have a lot of BTDT moms around I am sure more ladies will chime in with their thoughts soon!