Been away for a while....Garrett and Clara-Leigh.....Mitochondrial Disease

iVillage Member
Registered: 04-26-2012
Been away for a while....Garrett and Clara-Leigh.....Mitochondrial Disease
2
Thu, 04-26-2012 - 10:43pm

Hello amazing parents!!

I was a frequent poster here for years until our son was diagnosed with Mitochondrial DNA Depletion Syndrome and we found other online resources that were more specific to his issues.

I truly learned so much on this board, and in fact, the moms here led us down the path of ANSWERS with their time, answers to my questions, and support....YAY!!!! While the diagnosis is not a good one, I can say that online support has helped and still helps me through so much!! I hope to stay more up to date here and get to know you all again.

If you are interested in our son's case (and our 11 year old daughter may have it as well, he is six and you can read our current blog at:

www.mitolifewindow.blogspot.com

And his medical history is on our old site:

www.johngarrettevans.weebly.com

Blessings to each of you, and if you remember me from years ago, we moved from Louisiana to Idaho and the climate changed has worked WONDERS for the kids' health and our sanity!!!

God's richest blessings of love and hope to each of you!!

Clara-Leigh

iVillage Member
Registered: 04-28-2005

Hi Clara-Leigh! I remember you and Garrett :0)

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Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008

It's great to hear from you, Clara-Leigh!

Avatar for jessthemom
iVillage Member
Registered: 03-26-2003
Welcome Home Clara-Leigh! My name is Jess, I am the mommy of 5 blessings, our youngest is our special angel girl. She has a neuro-muscular disease, that is suspected mito, she is very complex and has lots of issues.

I can't wait to get to know you better.