Confused about severity of Hypotonia

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anonymous user
Registered: 12-31-1969
Confused about severity of Hypotonia
Sat, 09-08-2012 - 8:38am

My Son is 20 months- he took his first steps a month ago but still isn't doing any walking. We raised concern and he was looked at last week by a speciaist who says he had low muscle tone- he is being tested for MD and Myotonic Dystrophy- she says this is just standard procedure. I have always found his arms to feel floppy when lifting him under the armpits but otherwise he doesn't seem to display many of the sympotms I have been reading about in my internet research. He met all his other developmental milestones- sitting, crawling etc. He feeds himself very well and can drink from an open rim. He has always nursed and fed well. He holds his fed up fine. He can follow instructions and shows good understanding but his speech is delayed- he has only just started but can say about 20 words clearly now- like more, car, juice etc. Also he was not a floppy baby and when he was newborn he passed all his muscle tone checks.

RE: my pregnancy it was fine apart from I had SPD. Delivery was normal- no meds just Gas and Air only thing was it was very quick 1hour and 10 mins from start to finish.

Does all this mean he has mild hypotonia and if so should I still be worried about potentially serious underlying causes. Other than telling me he had it and he needed testing the specialist hasn't told me anything or suggested he needs PT or anything so totally confused and all I know so far is from Google searches :smileysad:

iVillage Member
Registered: 02-10-2012
Mon, 09-10-2012 - 3:32pm
It could just be a mild form and might or might not require some PT. He's doing much more at his milestones than my daughter has been, so I really don't think you have to worry a ton about it.