Making Progress

iVillage Member
Registered: 10-19-2011
Making Progress
5
Wed, 11-30-2011 - 6:45am

Here's a recap:

Rae had an MRI and blood work done the results coming back as normal. We had x-rays of her hip and spine done with the results coming back as infantile scoliosis, likely a result of her hypotonia which may or may not correct itself. We ended up seeing a Nutritionist due to weight gain concerns and she felt that we were on the right track and there were no real worries. YIPPIE!

Rae has been in PT through the EIP (Early Steps in FL) and has been making some progress, but we are still working on clapping, lifter her arms (which are the weakest of her extremities), and putting weight on her arms/forearms/hands. There are some sensory issues, especially on her feet and our project for today is

Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008
Fri, 12-02-2011 - 4:17pm
She sounds like she's doing great! Yay for doing more signs, is she getting some Elmo toys for Christmas?

iVillage Member
Registered: 10-19-2011
Mon, 12-05-2011 - 7:32am
Yup, Elmo is in her closet waiting to be wrapped and tucked under the tree. We're really excited about it since she is so responsive and verbal to the show.
Avatar for jessthemom
iVillage Member
Registered: 03-26-2003
Wed, 12-14-2011 - 11:55pm
Yay for the awesome progress Rae is making!! I hate waiting for appointments ;) I hope they figure out the cause so they can give her the utmost support she deserves and needs. It is hard when you are just sitting around waiting for phone calls that will drastically effect your life!

We are here in meantime supporting you!
iVillage Member
Registered: 09-17-2011
Wed, 12-28-2011 - 1:44am
Yay Rae!!! That's awesome progress!! I know about the waiting!!! It's excrutiating!! I hope Christmas was wonderful with Elmo entertainment! Many blessings to you and many (((HUGS))) to you and Rae.

Mir
iVillage Member
Registered: 10-19-2011
Sun, 02-12-2012 - 3:44pm
Thanks. I just saw this posting otherwise I would have replied sooner. Christmas went well and Rae attempted to eat her fair share of wrapping paper. I hope you had a lovely Christmas as well.