Not walking yet

iVillage Member
Registered: 02-10-2012
Not walking yet
6
Thu, 01-31-2013 - 3:28pm

I was wondering how my daughter compared to other kids with hypotonia, she is not yet walking at almost 18 months.  They are working on it with therapy and I've seen progress,  but it still worries me.  Do I just need to give it some time?  It's just so hard when we are on playdates and the other toddlers can do so much more than she can.  

Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008
Fri, 02-08-2013 - 3:39pm

It's hard when they aren't at the same level as their peers :( It sounds like you just need to give her some more time, she's making progress which is what is most important. Keep us posted!

iVillage Member
Registered: 08-14-2009
Sat, 02-09-2013 - 8:09am
Hypotonia varies so much. My son probably has moderate hypotonia and he didn't start pulling to stand or crawling until about 18 months. He didn't walk until 34 months and still struggles with stamina and can't do many things other kids his age can. It's hard when you compare them to other kids. Just remember she'll do things when she is ready on her own time table.

 


Nichole - mom to Andrew born 12/1/08 with the most gorgeous eyes.  Hypotonia, soft cleft palate and saggital craniosynostosis.  No dx, yet.  PT, OT and ST 2 x weekly.

iVillage Member
Registered: 05-18-2005
Thu, 02-21-2013 - 8:21am

How quickly a child progresses often depends on the underlying cause of the hypotonia, which is basically a symptom rather than a disorder itself.  Have you been to a pediatric neurologist yet?  If nothing else, a neuro assessment can be a useful guide to therapists providing PT, etc.    GL!

Gwen (mom to Aaron, finally ID'd as dyspraxic)

http://i218.photobucket.com/albums/cc248/gwennyc/b6yfcl.png<A href="http://s218.photobucket

iVillage Member
Registered: 03-21-2013
Thu, 03-21-2013 - 8:22pm
My son is 11.5 months and he was just diagnosed with low muscle tone. At his 9 mo appt I asked doctor about why not crawling and he just said he was just fine, met all other milestones. I pushed so he ordered hip x ray, which came back fine. We started therapy at 10 months and have been going weekly for 6 weeks. I see improvement but he still seems so weak. On hands and knees and will crawl if I push his legs along with his hand movements. Just doesn't have strength to pull legs up in crawl. He can now do a tall kneel and we have him standing while most weight leaning on flat surface (learned at PT). Is this about in line with what other moms are experiencing? He is very motivated and curious, just doesn't have the strength to do. Went to see Ped neurologist last week and his in-office exam conclusion was that my son was just taking his time. But then threw out hypotonic almost nonchalantly. He said we will do MRI and blood work bc we don't know father DNA (I used donor sperm-IUI). Anyway, I'm just so worried and reaching out anywhere I can for support and answers. Praying we can figure out what is going on, and if simply low tone, how best to help him (I believe that low tone is a symptom of something else...)
Avatar for Cmmelissa
iVillage Member
Registered: 11-13-2008
Fri, 03-22-2013 - 3:19pm
Hello momomdavid, welcome to the board! You are doing a great job of advocating for your son, it sounds like he's making really good progress. Starting PT this early is a great advantage for helping him improve. Are you seeing other things besides the low muscle tone?

iVillage Member
Registered: 03-21-2013
Fri, 03-22-2013 - 4:30pm
Thank you! I'm not really noticing anything besides the gross motor delay but I am a first time mom so I may not know? No one has pointed anything else out. What should I be looking for? He seems to fatigue easily or quickly but is very curious and motivated to move around so he is back at it. He sat up on time, rolls over, babbles.