My Charlie had quite a Dr's visit!!!

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Registered: 03-27-2003
My Charlie had quite a Dr's visit!!!
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Mon, 03-31-2003 - 6:15pm
It was his 18 month check up, a month late. All seemed fine, he was back on the growth chart at 10%! That was so great to hear, we are starting PediSure at night to help him out a little in the weight department. The Dr. said that hopefully by his 2 year check up, Charlie's weight would match his height at 25%.

But.. On Friday, I was shopping with Charlie at Sam's Club and I noticed that his fingernails were blueish/purple. So were his lips. I didn't think anything of it cause I had taken him off the bottle and he wasn't drinking more than 6 ounces a day. So I went home and put him back on the bottle. An action for which I am sure to seriously regret later. Anyway, Sunday I came home from a movie and DH said that Charlie looked blue. Sure enough, lips, hands, fingernails, blue. This is not a pretty color. But it went away and we passed it off as "he must have been cold". Today(Monday), I was in the house and Charlie wanted me to sit down with him to read a book. I noticed the blue again, although it seemed worse than Sunday. Charlie wasn't very eager to move around much but he did pink up after about an hour but now my mommy radar was going off. You know that feeling? I just knew this wasn't something to pass off. This was 2:00 pm and the dr appt. was at 4. The first thing I mention to the Dr. is the blueness. She looks at everything else (for the check up) then starts asking me a lot of questions of the circumstances of the episodes of blue. He could of been cold on Friday, having just come in from outside, Sunday, Charlie had been at the park but he was home at least a half hour before I saw him and it lasted a half hour after that. Today, he wasn't outside at all. The Dr. asked if I noticed him holding his breath. I hadn't thought of that so I don't know. She is obvoiusly concerned, and I got scared. She ran a full blood work, a chest x-ray and a pulse ox. Here is the good part - all are normal. The x-ray has to be done again tomorrow cause it wasn't clear enough. So, if these episodes continue to happen, we see a cardiologist for a heart monitor halter to see what is happening to Charlie when these blue episodes happen. Hmmmm.

I'm sitting on this fence right now. On one side, everything is great. There is strength and health over there. On the other side is fear and dread. Is this making any sense? I am scared and I don't want to be scared, my mind tells me that all is going to be OK. Right? I hate this so much! This really is the hardest part of being a Mommy.

Thank you all for listening. My DH has class tonight and I needed to get this off my chest.

Carol

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Registered: 03-27-2003
Mon, 03-31-2003 - 6:30pm
(((Hugs))) That sounds so scary Carol. I will keep Charlie in my prayers.

Denise

Denise & Maggie

 

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Registered: 03-26-2003
Mon, 03-31-2003 - 8:08pm
Oh my gosh! I'm so sorry you have to worry about that. I'd be really scared too. I will say some prayers for all of you - let us know what they find OK?

Big Bear Hugs!

Christine

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Registered: 03-26-2003
Tue, 04-01-2003 - 9:02am
Carol, I really feel for you, waiting & seeing, can be difficult especially when your waiting to see what's going to happen next to your child. Everything you described sounds like it may result from lack of oxygenated blood flowing through the system. Here's a link:

http://www.lpch.org/DiseaseHealthInfo/HealthLibrary/cardiac/phyex.html

If it help put your mind at ease...I would make that appointment with the cardiologist, just to get the ball rolling. Good Luck.

Nanc 4Boys

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Tue, 04-01-2003 - 2:08pm
Hi there. Charlie had another blue episode this morning. I documented the whole thing. It lasted about an hour, the same time frame as the others, although not as severe.

We went in and had the other x-ray done and that went well. Charlie even smiled at the woman who drew his blood yesterday. I thought he would dislike her for awhile at least.

I am going to wait for my doctor to call me tomorrow after she looks at the x-ray. I believe that this isn't too serious that I can wait until tomorrow to hear what she has to say. I've decided that I am going to look at this as not serious and keep my spirits higher. I have to believe that this is going to turn out to be nothing. I popped over to the children's health heart board to see if i could find any information and I am not going back there. Those poor children and parents.

Last night, Charlie woke up several times. DH and I took him out of his crib and just took turns holding him as he slept.

Nancy, thank you for the information. I looked for hours yesterday and my search engine didn't pull up anything. I forwarded the information to my husband.

Carol