MJ-Question about OT Sorry, got kinda long! :)
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|Wed, 08-22-2012 - 1:01pm|
MJ, remember when you said I should really go back to OT? Well, after I saw the dr. at the end of June, I agreed to give it another chance. I had my OT eval (why another one I don't know but I did) on Monday. She asked me my goals and what I expected. I told her I wanted to get down to what is really wrong with my hands and arms. I told her that I had gone in for an extra appointment last Thursday b/c my shoulder was super sore and I had tingling running up and down my left arm and my handds/thumbs were hurting much worse. The dr. said I had Carpal tunnel syndrome in the left arm and I feel like my right one is coming to that too. I asked the dr what to do about my hands thing and I felt like he wasn't addressing it well. All the guy said was that I have arthritis and the fibro.
He said he would send me back to the OT to help the pain, and gave me a pain med. (Sulendac). Well after I left there, I felt very confused, frustrated and I feel like I am not being heard, as he is not really explaining things, and I don't really know how much he is hearing since he has his back turned to me and is looking at the computer more than at me. Drives me bonkers. I already get frustrated being there b/c the front staff people are so incredibly rude I can't even stand it. Anyway, I agreed to try the OT again.
She asked me what my goals were and I told her that I wanted to figure out how to reduce this pain, and I wanted an explanation of what *really* is wrong. She did a bunch of tests and she did one where you hold on that metal thing that tests your strength. The first eval I was able to squeeze it even though it hurt, but this time I couldn't do it at all without horrible pain. Basically she said my ROM is pretty good, but I have muscle tightness and some worsening weakness.
I said I didn't really get what was wrong, and she gave me a brochure on Fibro, which, for the most part was stuff I already knew. I get the feeling that she really doesn't know what to do with me. She says heat is good for me but I've been saying that cold feels better b/c it's cooling down the warmth in my hands (like nerve pain).
So what the heck do I do? She did mention that I need to learn the fine line between over doing things and not overdoing things. I also mentioned that I can no longer sweep, mop, or vaccuum without massive pain now too. Holding dishes is really hard too--I feel like they are too heavy to lift.
I kind of get the feeling that I am not really welcome there and that I am a weird case and that they don't know what to do with me. I did talk to my foot dr. (b/c I ALWAYS get questions answered no matter what, and he is extremely knowledgeable and a fantastic dr.) and his take is that sometimes some people with arthritis will get worse very quickly and others it will take longer. I got the impression he thinks I don't have OA but a type of inflammatory arthritis (so far not RA), b/c I asked if this was related to the fibro, what explains the redness, warmth and inflammation and swelling in the beginning). It also seems like it's heading to the way my feet are...some pain at first that was noticeable but bearable, to one day completely unbearable, and constant and the ONLY thing that absolutely puts me out of pain is to do NOTHING. I mean flat out sit on the couch not reading, nothing. Maybe just watch tv.
I am going to see about getting a referral to the orthopedic clinic, and see what they say. Should I try a different specialist?