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|Mon, 07-30-2012 - 7:13pm|
Today was the 1st step in a long process of genetic testing. My daughter went and did her blood screen today and when those results are back my hubby and I will go. After that we meet with our specialist and get setup for an amnio. My hubby and I are carriers of a very rare genetis condition called lamellar ichthyosis. We never knew we were until our DD was and no1 knew what was wrong with her. drs. came from differ hospitals until someone said aw ha this is what it is. It's been a struggle and I must say dealing with the remarks of other parents has been the hardest. Other mothers pull ther kids away and say dont touch her you might get it, eww whats wrong with her. I'll admit I even got into an all out fist fight with my dads GF for making fun of DD. ANYWAY, back to the subject. there is only 1 lab in the US that tests for this so it takes a lil while. we are only testing because we live in a new city and we want the drs. to be prepared for what may come, plus theres alot of things that have to be made different at home, that you wouldn't with "normal" baby. I am so anxious to get this testing done, just so I can be mentally prepared.