Trisomy 15 / 18

iVillage Member
Registered: 01-11-2012
Trisomy 15 / 18
7
Sat, 07-28-2012 - 10:35am

I never heard of Trisomy 15 or 18 until it has taken two little boys away from their Mothers.  I know both Kiki and Krista would have loved their sons no matter what--  I am truly sorry that something like Trisomy has taken Will and Cabe away.  

(((HUGS))) 

 

iVillage Member
Registered: 06-02-2012
Sat, 07-28-2012 - 1:50pm

I had never heard of Trisomy either, until Kiki's post. I did some research about it after I saw it. I agree those babies would have been loved and cherished no matter what and that their mommys still love them so much now as angels.  It's sad what our bodies do when something isn't going perfect- too bad it's not our decision to make.  One thing that had me so upset during my miscarriage is when the doctors told me that its the bodies way of getting stopping a pregnancy that wasn't going right.  I know it's peoples way of making us feel better- but it made me feel like... an animal or something... like it was so primitive that our bodies just chose for us.  I also just try to think of it as God- he needed our babies with him in heaven, even though sometimes I am angry with him.

Avatar for cowboys_grl
iVillage Member
Registered: 03-28-2010
Sun, 07-29-2012 - 4:28pm

Thank you Julia & Alisa!

I 'think' hearing about 'Trisomy ?' is becoming more common with the detecting abnormal chromosomes a baby has, that is incompatable with life, the earlier a baby is detected. 

It used to be we had to wait until we were 12 weeks to get a u/s & alot of us would've already m/c'd by the (1st trimester), so we couldn't have gotten the baby checked.

But, now, detecting pg. as early as 6.5 weeks, more things that go wrong, in the 1st trimester can now be detected. Like, my angel Cade died at 8 weeks, but since my body still carried the pregnancy. I was able to have our baby tested, on why, the baby died.  Which is helpful to me, altho devastating he had it.....I now know, that nothing I died, caused the baby to die.  He just had too many chromosomes.

Kiki (hit my magic age of 45 and no longer TTC),but mom to a beautiful teen DD & 2 angels in heaven & married to my best friend

iVillage Member
Registered: 06-02-2012
Sun, 07-29-2012 - 10:46pm
Thank God for all the new technologies. It does help mommies to know that it was not their fault, especially since guilt is one of the big feelings we all feel after a loss. How are you feeling?
Avatar for cowboys_grl
iVillage Member
Registered: 03-28-2010
Mon, 07-30-2012 - 6:47pm

Better...thnx.

Yes, it does help to know, there was nothing I could've done to make the outcome different.  I've come to peace with everything.  I decided to no longer TTC.  I think, for me, 2 losses in nine months was enough.  DH & I will still have fun, but not time it & if God wants me to have a baby? Then, I will, but I just don't 'think' it's in our cards.

I hope your pregnancy is going well, it's pretty scary being pg. after a loss, huh!  But, you just gotta breathe each day & take 'things' as they come, one day at a time....it's really all you can do! And 'try' not to overthink things too much, too!  :smileywink:

Kiki (hit my magic age of 45 and no longer TTC),but mom to a beautiful teen DD & 2 angels in heaven & married to my best friend

iVillage Member
Registered: 02-28-2012
Mon, 07-30-2012 - 6:54pm

Thank you for your kind words!  I  had never heard of Trisomy 15 or 18 before either.  I only knew about Trisomy 21 (Down Syndrome) and I felt at peace with the possibility of that diagnosis.  Last year I went to a continuing education course about oral motor early intervention with babies with Down Syndrome and the results were phemonenal.  I had planned on going out to the clinic in North Carolina for 3 weeks to do an internship if we learned our baby had Down's and I felt completely prepared for that possibilty.  Learning that Will had Trisomy 18 and hearing the words "incompatible with life" and "fatal condition" were utterly devastating and I felt totally helpless to help my baby.  It was the worst feeling I had ever experienced.  To make matters worse, the doctors said that continuing with Will's pregnancy could be life threatening for me and they suggested we terminate the pregnancy.  After several excruciating days (and nights without sleep), we decided to let Will stay with us as long as he could and I cherished my moments with him.  At least now I could sing to him by name... There isn't a day that goes by that I don't miss Will.  I know he is better off now with his great-grandparents and big brother/sister, but we miss him terribly here.  I find that as his due date approaches, my eyes are filled with tears more and more often...

I think Kiki is right about the early ultrasounds increasing our ability to diagnose why some babies don't survive.  My other pregnancies had a dating sonogram at 8 weeks and then didn't have another one until 20 weeks.  The 12 week nuchal fold sonogram was completely new to me.  Somedays I wonder if I hadn't had the sonogram if it would have been better.  I would have continued in "pregnancy bliss" and would not have done the CVS.  Will seemed to tolerate the CVS well; his heartrate was strong before, during and after, and I had no complications from the procedure, but I can't help but wonder if it somehow stressed his little body to a point he could no longer bear.  He passed away about a week after the CVS.  I know the outcome for Will would have ultimately been the same whether I did the test or not, but maybe we would have had a little more time with him, or maybe we would have been able to hold him for a few moments or days....Yes, we loved Will even if he was not perfect in the medical sense.  He was perfect to us.

I'm not sure about Trisomy 15, but "Trisomy 18 Foundation" has a wonderful page on Facebook with some incredible stories of love.

Lilypie Angel and Memorial tickers

Avatar for cowboys_grl
iVillage Member
Registered: 03-28-2010
Tue, 07-31-2012 - 11:25am

>>  The 12 week nuchal fold sonogram was completely new to me.  Somedays I wonder if I hadn't had the sonogram if it would have been better.  I would have continued in "pregnancy bliss" and would not have done the CVS.  Will seemed to tolerate the CVS well; his heartrate was strong before, during and after, and I had no complications from the procedure, but I can't help but wonder if it somehow stressed his little body to a point he could no longer bear.  He passed away about a week after the CVS.  I know the outcome for Will would have ultimately been the same whether I did the test or not, but maybe we would have had a little more time with him, or maybe we would have been able to hold him for a few moments or days...<<

Krista, I, personally, don't think it would've made much difference if you had to CVS or not.  I think with having t15, 18, or 13. Their little hearts can only beat until a certain timeframe & then, that is it.  :smileysad:

My 1st one (Taylor), had a strong hb, that I saw & heard at 6.5 weeks, but then died at 7 weeks.  I am sure she probably had t?, too. Then little Cade lasted until, right before our u/s at 8 weeks.  I, too, questioned, should I not have gotten that 1st transvaginal u/s, did that help kill my baby?! But, now after waiting until 8 weeks to have a u/s and Cade dying right before it....you realize, they just had a chromosome abnormality & nothing we did or could've done, can change that.

All we did was try to have a healthy baby, by eating right and getting regular doctor check ups, to give them the best chance at life possible.

Hugs, my gal....baby dust to you!!!!  :heart:

Kiki (hit my magic age of 45 and no longer TTC),but mom to a beautiful teen DD & 2 angels in heaven & married to my best friend

iVillage Member
Registered: 02-28-2012
Tue, 07-31-2012 - 11:58am
Thanks Kiki. I know you are right. We did all we could for our little ones.

Lilypie Angel and Memorial tickers