New Here to the board...have some ???

iVillage Member
Registered: 03-27-2003
New Here to the board...have some ???
7
Thu, 03-27-2003 - 11:25am
Hello ladies! I'm happy to be joining you. My name is Kari and I'm 23. I lost my precious son, Kason, on 2/12/03 @ 38 weeks 3 days due to maternal blood clots. I've been lurking for awhile so most of my questions have been answered from Alisa's post to all of you. I still have a few questions though. I go to my dr. next week and I want to make sure I ask all the questions that I need to. First let me tell you my situation. I had a bunch of blood tests done the day I found out that I had lost my son. All blood work came back neg. My dr. said that he believed the cause was due to an autoimmune reaction/blood clotting disorder even though blood tests were neg. Blood clots were found in the placenta however. He said he would monitor me more closely next time and I would have to have Heparin shots. I guess I'm wondering if any of you have lost your precious angel(s) due to autoimmune/ blood clotting? If so, what have you been told by your dr? Is it better to take Heparin while TTC or after you conceive? Should I have genetic testing done? Should I be retested for autoimmune/blood clotting disorders? Is there anything I should do while TTC (taking baby aspirin?)? If any of you ladies could give me some advice, I would greatly appreciate it. I'm completely clueless about all of this and I want to do everything I can to prevent losing another child. Thanks for reading and any advice you may offer. (((Hugs))) to all of you and praying that we all have our dreams come true one day!

Kari

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Avatar for connie_uf_gator
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Registered: 03-27-2003
Thu, 03-27-2003 - 12:00pm
Welcome to the board. I'm so sorry to hear of your loss, but I can help you.

Do you know exactly what blood tests your doctor ran? Can you tell me specific names?

The good news I'm hearing is that your doctor will treat you with Heparin regardless, which shows you have a VERY smart doctor!

I lost my son due to an undiagnosed genetic clotting disorder called Prothrombin II gene mutation. Since then, I've had m/c after m/c. I sought the help of a new RE (I fired my old one for lack of care) and she referred me to a Hematologist. They both encouraged me to be on Heparin (Lovenox) all cycle long while ttc because my m/c's are very early. Plus, many "experts" recommend starting it preconception to prevent not only m/c but stillbirth later in pg. My RE is insistant that I take BA along with my Lovenox, apparently studies have shown that the two work best when taken together. IMO, and I'm not a doctor, I think that in your case, taking BA all cycle and starting Heparin with a positive test would be fine.

I've yet to become pg since I started this new "plan" with the Lovenox and BA all cycle, so I don't have any proof that it is the answer to my m/c's, but no doubt, it will prevent me from having another stillborn baby due to clotting.

Connie

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Registered: 03-27-2003
Thu, 03-27-2003 - 3:50pm
Connie,

Thanks so much for your advice. I don't know all the blood tests that were run, but I will find out and let you know. I've been curious also for what all I was tested for. I noticed in one of your posts that you are also taking progestrone. I had to take Prometrium while pg. because I had some spotting early on. I think I'll probably ask my dr. if I should take this also while TTC. Well, thanks again for your advice and info. It really helped and now I know what I need to talk to my dr. about.

Hugs to you and Good luck TTC! I hope you get that positive sign soon!

Kari

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Avatar for connie_uf_gator
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Registered: 03-27-2003
Thu, 03-27-2003 - 6:15pm
Kari,

You're very welcome!

I have to tell you, I think Prometrium is one of the worst forms of progesterone. Very few doctors are still using it. Studies have shown that very little makes it to your uterus, most ends up in your liver where it stays then shows up as very high levels in blood tests. I would ask about prog. suppositories, mom&pop pharmacies make them on sight. Or, ask for Crinone gel. If you must use Prometrium, many women use the pill as a suppository and it seems to be much better absorbed that way.

Connie

Avatar for cinnamongirl99
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Registered: 03-27-2003
Thu, 03-27-2003 - 10:10pm
Kari, I definitely defer to Connie on blood clotting issues. She is an expert on the subject. I just wanted to welcome you to our boards and say how sorry I am that you lost your precious son.

Hugs,

Jessie

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Registered: 03-27-2003
Fri, 03-28-2003 - 5:57am
Hi Kari - I don't have any input on the your clotting disorder (Connie has a wealth of info), but I wanted to say how sorry I am to hear of your loss and to welcome you to the board.

Patricia

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Registered: 03-27-2003
Fri, 03-28-2003 - 11:12am
Patricia and Jessie,

Thank you so much for your sympathy and the warm welcome!

Hugs to you!

Kari

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Registered: 03-27-2003
Fri, 03-28-2003 - 11:24am
Connie,

Thanks for the advice about the Prometrium. I am so glad that I found you! LOL You know so much about my situation! It's really nice to talk to someone other than my dr. about all of this. No one else understands. I'll talk to my dr. about my options and let you know.

Thanks again and good luck to you :)

Kari

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