I think I have some very good news

iVillage Member
Registered: 09-06-2009
I think I have some very good news
6
Wed, 10-21-2009 - 11:17pm

We went to Boston today & dh had a test done. His trach is out

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iVillage Member
Registered: 02-28-2007
Thu, 10-22-2009 - 12:56am

That is great news.


Kathy

iVillage Member
Registered: 08-25-2008
Thu, 10-22-2009 - 7:06am

I am so happy for you & your husband. Having the vent removed is such a big step in the right direction!


As far as the lady from the vent co., did you sign anything giving her permission to discuss things w/ your ds? It is actually illegal for her to do so w/o specific written permission according to the federal privacy act. You & your dh have very clear rights.

Laura

Laura  

iVillage Member
Registered: 09-06-2009
Thu, 10-22-2009 - 7:49am

That is my point Laura, this woman calls my ds almost every day & discusses my dh & me. When she discusses me it seems to be all negative to my ds. She got angry w/me when I questioned who was paying for what suppiles came into this house. The vent lady kept telling me we couldn't have more of things when we ran out because dh had a bad week & needed more care, suctioning whatever & hospice was telling me they were paying for everything he needed beyond what medicare would allow. When I was given the run around one day because I was running out of suction cathers which were crucial to his health that was when I asked what medicare was paying for & what hospice was paying for. From that day on she has not stepped foot in this house.


I will explain what led up to the removal of the trach in my post to all. The vent company is not being supportive at all & actually tried to scare the H#$$ out of us last night. I will be making phone calls today to find out what other vent companies do.

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iVillage Member
Registered: 08-28-2007
Fri, 10-23-2009 - 7:28am

Dear Dee: I am so praying that everything works out great with you and your DH.

Woodstock (gwen)

iVillage Member
Registered: 09-06-2009
Fri, 10-23-2009 - 8:19am

Thanks Gwen this so called respirtory therapist called dh's pulmonary dr. here on Wednesday night & told him before dh could talk w/him or for that matter the dr. from Boston. His pulmonary didn't call back until 9PM last night because he was so mad & he's not sure he'll keep dh as a patient. His dr. here knew we were going to Boston because dh told him. So because J overstepped her bounds we may need to look for a new pulmonary dr. because dh retains carbon dioxide he needs a blood test today or tomorrow to be sure his bipap is doing its job & getting rid of CO2 & we have no dr. to call to get one done now. Dh's pulmonary dr. told him last night that J had called him & he was very angry over what was done & didn't want to speak about it. he told dh that he should call his office in 2 weeks & maybe he would see him then. The dr. in Boston should have called him before he took out the trach. maybe so but its not our fault that the 2 drs. who btw claim to be friends & know each other for the past 30 yrs. didn't communicate. Personally I think dh needs to find another pulmonary dr. period because I never did like this one & he said dh couldn't get well & should have been put in long term care somewhere. Also his dr. said he had COPD but Boston found absolutely no evidence of COPD.


Anyhow the upshot is a bipap got dropped off from the vent company & we were given very fast instruction of its use. No one put the mask on dh & turned on the machine to be sure the fit was right & all was working well. I figure because of this alone we need a new company & today I plan on researching a bit more. I think it might be in our best interest to dump both the vent company & the dr. because in my opinion both have acted very unprofessional.


I pray this works because dh does not want the vent back & told me he dreaded night every day & was very uncomfortable on it. The last month he was waking up feeling like he couldn't breathe & had alot of fluid accumulating which I could hear in his chest. He would take the vent off & after about 1/2 hr. all would be clear. No one wanted to hear about that either, it was all in dh's head. So this bipap working is very important for alot of reasons.


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iVillage Member
Registered: 08-28-2007
Mon, 10-26-2009 - 7:33am

Dearest Dee I just got your reply via e-mail.

Woodstock (gwen)