My explanation now that I'm more awake
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|Thu, 10-22-2009 - 8:28am|
As everyone knows we went to Boston for a 2nd. opinion about 3 weeks ago. The dr. there wanted to do a bronchosophy to look down dh's throat & check it all out, yesterday was that appointment. he (dr) had asked for the records of when dh was in the hospital & we of course signed the release for them from all hospitals in the last yr. We were told dh had trachial malccia & could never not have a trach because his throat would collaspe & he would die. Trachial malaccia is when the throat muscles go slack & the damage can be seen, its usually caused from yrs. of having a trach, which dh had only had a trach for a few months at this time. I didn't question anything because there was some damage in his throat.
Yesterday I brought his extra trach w/me & told the nurse she could have it if they wanted to put the newer one back after they took out the old one which was going to be changed next week anyhow. She told me the dr. was thinking of a different trach & would be out to speak to us (ds & me). The dr. came out & told me if everything looked ok when he looked he was pulling the trach out & putting in a button to keep the trach hole open in his neck just in case a trach would be needed again. After about an hr. the nurse came out to expalin to us that the button was put in & 3 of the best drs. were in that room looking at dh's trachia, it was decided that he would use a bipap to blow off the CO2 he may or may not be retaining anymore & did I know his vent settings. I did & she needed to call the vent company to set up a bipap for last night w/them. In the meantime I told ds to call them & tell them to expect the call. He did & I know now the vent lady (J) was texting him while we were sitting waiting .
The dr. explained to us that he found no trachial malaccia at all. The throat may have been injured at one point due to all the trach changes being done in the hospital but that damge had been healed. That damage is very different looking from mallaccia. There is no need for a trach if the bipap can clear the CO2 which is why they put the button in as a precaution in case the bipap in dh's case doesn't work. The nurse told us that this dr. was expert in mallacia which I had already known because I did my research on him. He also called in an ENT during the procedure & already had another dr. in there w/him. The nurse told us we had 3 of the top drs. in this field in dh's procedure room. Dh told us that he was watching & saw everything they saw on a 40 in. flat screen sony. They were all in agreement after much scrutinizing his throat that his throat was fine & nothing was wrong, no damage anywhere therefore no need for the trach. NO Malaccia at all! We were also told after looking at many of dh's catscans from his time in the hospital that there is NO lung damage, no COPD