Went to Boston on Wednesday & we

iVillage Member
Registered: 09-06-2009
Went to Boston on Wednesday & we
4
Sat, 11-28-2009 - 10:41am

go back in 2 weeks. can't seem to get dh's iron & red blood cell counts up. They started him on a shot that is suppose to stimulate the kidneys to do this. Other than him sleeping lousy at night all seems to be going ok. I'm still a nervous wreck & find myself crying at the drop of a hat. Maybe its the time of year because this is when he 1st started getting sick last yr. w/bronchitus. The dr. we had is gone & replaced w/another one as is the respiratory company, we don't need their negativity around us.


Nik doesn't want a xmas tree put up this yr. so I know how her feelings are about all that happened last xmas. I am hoping & praying that she has a good xmas this yr. because xmas shouldn't be like this for someone still so young.

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iVillage Member
Registered: 02-28-2007
Mon, 11-30-2009 - 1:48am

Get that Christmas tree up.


Kathy

iVillage Member
Registered: 02-28-2007
Mon, 11-30-2009 - 2:06am
OK, now that I've told you what to do about Nik and the Christmas tree issue, I'm gonna tell you what YOU have to do.

Kathy

iVillage Member
Registered: 09-06-2009
Mon, 11-30-2009 - 8:36am

Kathy, I know your right I just can't seem to get out of this mood. I'm so scared all the time & dh is needing more oxygen for some reason & I don't know why. His oxygen level keeps dropping & 2 weeks ago he was going w/out oxygen for long periods of time or very little & now all if a sudden all thats changing. I don't know why or what to do about it.His blood level isn't coming up & the drs. are beginning to worry about that. I don't know what the effect of being in the hospital & taking all different meds would have had on his blood. His pulmonary dr. here thinks all the antibiotics they gave him in the hospital is the cause.


As for his breathing & oxygen level I'm so afraid the fluid is coming back. Thanksgiving day he was doing so good & was so much like himself.


Here I am back to waking up afraid all the time. I can't do this all over again & neither can he, neither one of us will make it this time. We changed resporatory companies & drs., the new respiratory company put him on new O2 cannisters that give O2 only when a person breathes in. I'm hoping that is the problem although he's still dropping when off oxygen. maybe its the weather, or something in the house now that its all closed up, I know that Nik & I are always a bit stuffy. I jsut don't know what to think or what to do.


If he does have COPD then I guess going thru spells of this will be normal its the fluid that scares me. I wish someone would just explain things to us so we know what is going on & what to expect. All this it could be this or that is driving me crazy & I feel like its all my fault for not noticing more last yr. Then I took him to that hospital & they diagnosised him all wrong & gave him too much O2, I picked up the rehab place that didn't pay attention & maybe if we had stayed in FL none of this would be happening now.


We finally told Nik about her bio dad she asked, her question was brought on by a book they read in school. She's not all happy about who bio dad is & doesn't want him to know that she knows. She's miserable in school & for the 1st time has a lousy attitude about everything. Maybe if we get into a house of our own & everything looks normal she'll do better. I need to catch a break w/out 24 hr. stress for a few months so I can cope w/whatever comes next.

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iVillage Member
Registered: 02-28-2007
Mon, 11-30-2009 - 1:38pm

You've got to stop thinking about all the "maybe"s in your life.


Kathy