Wyatt Roy news?

iVillage Member
Registered: 08-08-2009
Wyatt Roy news?
17
Tue, 08-30-2011 - 12:36am
Dear friends,

On page 4 of "teen sex and parent ground rules" down below is a post by Bunnyrose about her grandson of four weeks having surgery today.

I have been checking in all day looking for good news. I can only imagin the fear this would bring.

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iVillage Member
Registered: 08-08-2009
Wed, 08-31-2011 - 11:13am
Oh yeah, you'll been blessed! Big time!

Most teachers will walk on hot coals to help a student. More so in a situation like this.

Nothing is more exhausting for parents than a sick child. What a blessing modern medicine is!

Being back to normal is a blessing in itself.

Love,

Kimmy


iVillage Member
Registered: 11-28-1999
Wed, 08-31-2011 - 12:09pm

Glad to hear everything worked out well.

Avatar for anotherheartmum
iVillage Member
Registered: 01-26-2002
Wed, 08-31-2011 - 3:52pm
thanks jlsjjsmom,

yes, I have heard of families having more than one child with chd. I know one family personally who have two daughters with hlhs. the mom herself has a heart problem, but I'm not sure what it is,. the first daughter is 3 yrs old, just had her third surgery and the newborn just had her first, but she had a difficult recovery with some complications. she is doing well now. the thing with these genetic conditions, sometimes the parent actually has the problem but doesnt know it because it is mild. but the child and subsequent children born with the defect is much more augmented and when the genetic testing is done, then it is discovered in one of the parents often times. with certain genetic disorders, the person has a 50%chance of passing it on. this happened to my cousin. when her son was born, I knew something was going on with him. turned out he has a congential liver disorder called Allagille Syndrome. after genetic testing, my cousin also has it but was so mild it was never discovered until her son was born. she did say that certain things from her childhood makes sense now. she only has the one son, will not have anymore because of the high odds, and if her son chooses to have a family one day, he will also have the same 50% chance of giving it to his own kids. I remember going to a medical confrerence one year, and sat thru this very topic, and then it happened in my own family.

as for my son, I dont think he has any syndrome but I will ask for testing now that he is almost 16 and I believe he needs to know in the event he becomes SA soon. if he does have a genetic syndrome he needs to be aware that it can be given to his own children, planned or not. as for future surgeries, he will need at least one more. his pulmonary valve is very small and thick, so his right ventricle is quite enlarged pushing blood thru the small valve and small pulmonary arteries. he also has a tricuspid valve leakage which resulte in his right atrium becoming enlarged as well. his heart does not relax as well as it should and so not enough blood fills it before being pumped to his lungs, but he does have good contractility which is good. his orgininal diagnosis is Tetralogy of Fallot.

thanks for the welcome
Avatar for sabrtooth
iVillage Member
Registered: 12-03-1999
Wed, 08-31-2011 - 4:45pm
<<>> I have a gf with Juvenile RA--her onset was in her early 20's. She is in her late 40's now and is significantly deformed, but manages to valiently plow on at home and work. Her mother and brother both have it. Her mother was totally disabled before she hit 60. Her brother chose not to have biological kids. She did have kids. Her son was dx'd in his late teens, and her dd, around age 10. Her son has opted for sterilization, something he discussed with his gf before their marriage this year. In part, he did not want to pass this on the further generations. Another reason was that he fully expects his wife may have to take care of an invalid spouse sooner rather than later, and to do that, be the family support, and take care of (possibly disabled) kids on top of it...no way.
iVillage Member
Registered: 10-16-1999
Wed, 08-31-2011 - 6:46pm

My son-in-law, Wyatt's daddy, was born with a severe heart defect that he had surgery for when he was just a couple of months old, he ended up having a heart valve replaced I think, has had several heart surgeries over the years, most of them before he was school aged.

iVillage Member
Registered: 08-08-2009
Wed, 08-31-2011 - 7:58pm

Another blessing indeed!!!!!!!!!!!!!!!!!!!!!!!!

iVillage Member
Registered: 11-21-2004
Thu, 09-01-2011 - 10:20pm

prayers for all of you!

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