14 year old with paralysis
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|Sun, 07-20-2008 - 3:49pm|
I am new to your board and wanted to spread the word about the following case and ask for the help of members of this board:
I am on a nonprofit board with the mother of the young woman, Jenny, who has been experiencing advancing paralysis for the last year and is now quadraplegic due to an unexplained medical condition (possibly juvenile onset Lou Gherig's Disease (ALS)). The condition MAY be tied to receiving the Gardasil (HPV) vaccine. Her family is looking to spread the word about her case in order to find:
1. comparable cases
2. doctors willing to review her case
They are hoping that comparable cases in particular could give her some hope for treatment.
You can read their blog here:
And here is a brief on her medical history: http://www.jentet.com/pub_history.html
If anyone who reads this could send out the message about the blog and the family's search for comparable cases (they have a sample e-mail on the blog ready for use), it would be appreciated. As mentioned repeatedly on their site, Jenny is not doing well and they're desperately searching to see if there is anything to be done to stop the advancement. Jenny's an amazing young woman.
I want to make it clear that the family is not at all certain that Gardasil was what triggered the onset of the paralysis. This is a very well educated family (mom is a professor at UCBerkley) and they are very careful about NOT putting the blame for this on Gardasil. The timing of the vaccine and on-set of the paralysis are suggestive of some kind of link, however, the factors may be complex. It may be that she was genetically predisposed in some rare way due to other autoimmune issues, etc. Their concerns about the vaccine and lack of response from the FDA is on the June 22nd blog and is worth reading.
Thank you in advance for taking your time on this!