Anyone here have "high risk" kids?

iVillage Member
Registered: 04-17-2007
Anyone here have "high risk" kids?
30
Sun, 10-11-2009 - 12:26am

I've been lurking a little while and am wondering if and how many of you have kids who fall into the high risk category with regard to flu vaccinations.

Let me introduce myself, I'm Shannon and my DD Rowan is 12 months old. She is fully vaccinated on schedule. She has DiGeorge Syndrome which can cause immune deficiency. She had open heart surgery at 7 days old and has a hypoplastic thalmus but a normally functioning primary immune system. Due to issues DiGeorge kids can have with vaccine response she will not be getting any live virus vaccines.

So yes, my DD is getting the seasonal flu vaccine and the H1N1. DH and I will be getting them also. DD also gets Synagis, the RSV medication. Per her immunologist, we are on lockdown now. I can't take her to church, to Target, or anywhere there is a lot of people. The funny thing is that she is quite healthy. She has had one cold with one double ear infection the entire year. Unfortunately, that cold landed her in the ER for dehydration.

My plan before my DD was born was to delay and selectively vax. I had never had the flu shot before DD was born and probably wouldn't consider it for my DD if she were typical. But she's not. All of her specialists are recommending the vaccines so we're doing it.

Anyway, I'm just wondering about everyone else here..any kids with special medical needs that put them in the high risk category? Thoughts?

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iVillage Member
Registered: 07-17-2005
Wed, 10-28-2009 - 4:46pm

I'm sorry to hear about all your sickness, we all have to deal with it and it is usually when they are young. My daughter had pneumonia when she was a baby, so I know how scary it is. She immediately responded to antibiotics. It was her first and only prescription medication, now she's 5. That is why I think she responded so quickly; she is healthy because she has not been dosed with a lot of pharmaceuticals. I hear children are getting 38 vaccines by the age of 2??? Wow, the same disease were there when I was a kid but I only got three vaccines! They have no earthly clue what this is doing to the immune systems because they have never done any studies using all the vaccines on a schedule, not today's schedule, and not the schedule from 1970 either...

I'll do my best to keep my children's immune systems healthy by allowing those immune systems to do the job, the way nature intended. Our kids know the importance of feeding the body with good food and they make it a habit to get exercise and sunshine as often as possible. Our kids know that synthetic Vitamin D comes from a bottle and real vitamin D comes from the sun. It's a shame that most children won't grow up with that knowledge.

We all do what we think is right. Some parents are reading the information and they know what "peer-reviewed" means and some parents are parroting what the pharmaceutical companies recommend, no matter how illogical it may be.

We all do what we think is best.

iVillage Member
Registered: 01-29-2005
Tue, 10-27-2009 - 10:48pm

Hi there,


I have a child with special needs.

iVillage Member
Registered: 07-17-2005
Mon, 10-26-2009 - 3:31pm

From my own experience, I've found that toddlers are germ factories until about age 5, then it tapers off. I remember my Mom once asking me "Why do you stay sick so much?" and after baby #2, I saw why :). Thankfully, I don't have one under the age of five now so maybe we'll be sick less often!

I hope!

iVillage Member
Registered: 04-09-2008
Mon, 10-26-2009 - 3:00pm

FWIW, IMPO, the only people that "intrude" are drive-bys that only like to demean without any understanding of theirs or others positions.

Rands

iVillage Member
Registered: 10-18-2007
Sat, 10-24-2009 - 1:59pm

I don't have high risk kids, if you read anything that I post that seems insensitive, accept my apologies.

I do have some history in my family that may predispose my children to other health conditions though... but not to the degree of your LO.

iVillage Member
Registered: 07-17-2005
Thu, 10-22-2009 - 11:08pm

"intruded"

???

Oh please Danelle, don't ever feel that way. You need to tell your story as often as you possibly can. The more *seeds* that are planted, the more likely parents will begin to question what they are told about vaccines. In the longrun, more babies may be spared. When my best friend's baby died of SIDS in 1991 I began to read a lot more about vaccines (I had already been researching for years at that time.). I didn't even want to have children because I knew I would be faced with the vaccine decision. For me, his death was life-changing. I finally decided to get pregnant about 5\6 years later and made the decision to selectively vaccinate and only after the age of 2. Today I regret that decision because I feel that my sons allergies and countless itchy rashes are the result of the few vaccines I gave him. My never-vaccinated daughter has NONE of those same problems. He stays sick longer than she does every single time.

Also - despite the chickenpox vaccine I allowed them to give him - he still got the worst case of chickenpox ever seen by doctors in the very large practice we went to. But if you have been around a while, you have already read about it I'm sure. :)

Welcome to the board and please do share your story often! We won't make you feel uncomfortable if you just ask questions without accusatory tones, I promise. Asking is the best way to learn. Debating is good too!

iVillage Member
Registered: 03-22-2007
Thu, 10-22-2009 - 9:59am

Hi Shannon! Sorry I did not recognize you. I remember now.


My daughter is doing great! We're going to try no G-tube for 3 days to try to get her to eat all the time. She eats quite a bit when she decides to so we think that removing her tube feeds altogether may be appropriate for a few days. If things go well, we won't go back to tube.


The vitamins she is taking are:


- MSB+ v7, vitamin D, Vitamin C


My daughter has had a really rough winter last year and we're trying to avoid going through the same this year.


She was also given Synagis in the first 6 months of her life as well as all the "regular" shots until this Spring. We declined Synagis the following year. She caught RSV but another baby in daycare also caught RSV and had been given Synagis. There are apparently several RSV strains and Synagis only protects against a few (at least that's what the other family has been told).


I sent you a private email with more detailed info.


Evelyne


iVillage Member
Registered: 06-16-2009
Wed, 10-21-2009 - 10:33pm

Thanks for sharing.

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iVillage Member
Registered: 06-09-2003
Wed, 10-21-2009 - 10:21pm

Yay! I can post! I'm mainly a lurker and feel rather inferior research-wise so I don't usually say anything, but it makes me wonder how many other people are 'out here' just like me. I just wanted to thank all the ladies on here who continue to put themselves out there on this board- you really are the only people 'I' *know* who don't vaccinate and it is rather lonely. I'm in your typical suburbia soccer mom world that has now been brainwashed into thinking my children are a cesspool of infectious diseases, so I rarely discuss my choice not to vaccinate unless someone asks me point blank.

WRT the high risk subject, my daughter Georgia was the final straw in my decision. After two friends had devastating consequences with vaccinations (one death, one encephalitis/cerebral palsy)I really started looking into things. I had already fully vaxed my two older boys, but had a gut feeling that I shouldn't vax or at least delay vaccinations with her. I figured it was just fear from what had happened to our friends so I finally conceded at 6 months after pressure from my doctor. She had a fever that hovered around 103 for four days. The doctor was unwilling to admit that the vaccines did it and said she must have been coming down with something already. For 2-3 weeks she just wasn't the same, she wasn't alert anymore, the sparkle was gone from her eyes- you just 'know' - plus I had already gone through vaxes with my boys and this didn't happen to them. Two months later my doctor convinced me to give it another shot (no pun intended). Same thing happened again but worse, she was listless, we were told to watch her closely for seizures. My husband and I took shifts holding her 24 hours a day, I was terrified that she would also become a 'sids' case like our friend (that coincidentally happened after his vaccines) and of course vowed to never vax her again if God would let her live. Again, she lost the sparkle, the alertness, and this time regressed. She no longer crawled- for 2 months, she did not start talking when my boys did and still has trouble verbally. She can clearly comprehend, but the connections have been weakened between what she comprehends and what she can verbalize. She's very bright and was working up to 100 piece puzzles at age 3. There's a lot to her story so I won't get into it. My youngest is not vaccinated at all.

What I have noticed between my vaxed and non-vaxed kids is how they weather illnesses. I just needed to post today because the two younger ones just had the flu (quite possibly the H1N1 according to the statistics in our area)- 48 hours, no complications (trust me I was ready to take them to the hospital in a heartbeat- everyone is so paranoid right now). I have to say that it was fairly short in duration, but that seems to be the case with all of the illnesses when the younger ones get something (compared to the older). Another thing is that the little ones never get sick 'again' once they have weathered a particular bug, whereas my boys get sick over and over.

Well, my little ones are begging for me to read to them, but today is just one of those days that I really feel reaffirmed in my decision, especially when I see a healthy immune system in action.
Sorry if I intruded :)

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iVillage Member
Registered: 06-09-2003
Wed, 10-21-2009 - 8:50pm
testing first (sorry) my computer hasn't been posting

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