autism links why not do a study?

iVillage Member
Registered: 08-05-2008
autism links why not do a study?
13
Sun, 09-07-2008 - 12:14am

Hi people!

I'm a lurker who is cautiously not vaccinating my 6 month old because I have yet to see better evidence for vaccines than against.

I have a question, perhaps someone knows the answer.

So I am wondering this: If there is supposedly NO link from vaccines to autism, then why is there not a simple study that looks at a cross-section of children between the late onset autism ages (whatever it is, say 1.5yrs -3yrs of age). They could then show the percentages of children who acquired autism later in terms of those who had received vaccines, and those who hadn't.

Why does no study like this exist? Or, if it does, could someone point me to it? I think this would go far to presenting evidence either way.

~EMILY

Sorry, just in case you haven't figured it out, I know very little about vaccines as of yet, so please don't get offended by this possibly hopelessly naive posting.




Edited 9/7/2008 12:18 am ET by silverbell29


Edited 9/7/2008 12:31 am ET by silverbell29
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iVillage Member
Registered: 04-28-2007
Sun, 09-07-2008 - 8:42pm

Hi and welcome,

I have two boys with autism and at least the oldest came out "off center" (this was after I had received every vaccine again that the INS made me take all in one day, then ds#1 was conceived within months.) He was off, but not autistic and then he had huge regression after his MMR/Varicella vaccines. I think with our family we carry an autism gene that is hiding out and environmental triggers activate the worst symptoms. Hence my younger ds isn't as affected (less vaccines, and my oldest had the heavy metal dump in utero).

Anyway in answer to your question, I think big pharma have a huge part in not funding a legitimate study like you suggest. It's not in their interest to say "yeah....we messed up...sorry!"

I also feel govt has too many in roads with big pharma to take anything they say as good fact. Great question, and please hang around.

Dee

iVillage Member
Registered: 12-14-2005
Mon, 09-08-2008 - 10:06am

Hi Emily and welcome to the board.

People have been asking for a study like that for some time. There has been no peer-reviewed study in this area. I believe there is a bill in congress though see: http://maloney.house.gov/index.php?option=content&task=view&id=1383&Itemid=61

Some organizations against vaccines have done them but on those grounds people also discredit their findings (which is up for debate!):

Study in the Netherlands done by a pro-choice vaccination group
http://www.vaccination.inoz.com/Vacc%20vs%20unvacc%20results%20survey.pdf

Generation Rescue study
http://www.generationrescue.org/survey.html

Hope you stick around out of lurkdom :)






iVillage Member
Registered: 04-02-2008
Tue, 09-09-2008 - 1:10pm
"roanmom" - I have a question for you. A friend of mine recently told me that her pedi said that there now may be a link between a high fever after vaccination, rather than the vaccine itself, and autism. Since you have two children with autism, I'm interested to know if you remember both of them having a fever after the shots? Also, a lady at playgroup this morning said that she has a friend whose autistic child is 6 years old and going to a doctor that is trying to somehow pull chemicals out of the boy's bloodstream. Have you ever heard of anything like that? It sounds a bit hokey to me, but I imagine you keep up with the most recent developments in treatment and could tell me if you've heard about it.
Shyla - Mom to Anna, born 9/12/07
iVillage Member
Registered: 04-28-2007
Tue, 09-09-2008 - 6:32pm

Thanks for your questions. Yes, both boys had high fevers after many if not all shots. My oldest had the worst reaction. Spiked a fever between 103-104 and screamed bloody murder for hours after the shots, (I remember in particular his MMR/Varicella). Anytime I brought my concerns to my pedi I was told this was all perfectly normal and just keep giving tylenol.

The fever is the immune system reacting to certain viruses, in our case live viruses trigger the worst fevers. So essentially I believe my kids (especially my oldest) had brain injury from the fever that was triggered by an over stimulated immune response to the vaccines. Again I want to reiterate, I had been given multiple shots at the behest of INS after I moved here. This was in 1999 before mercury was removed from vaccines and I conceived my ds a few months later; I believe he received a heavy metals dump in utero, his immune system was compromised then and there and then the barrage of vaccines after his birth added to his injury. He also has moderate reflux which is often associated with kids on the spectrum; I suspect their guts are dealing with the immune system violently reacting from vaccines; most of the immune system is in the digestive tract....the commercial isn't lying, lol;)

My youngest ds wasn't as sick as my oldest, but in order to avoid thimerosal I was talked into giving him several multiple vaccines that were really meant for older children. (eg: a 6 in 1 vial, rather than a 3 in 1). I assume his little immune system was assaulted as well, although his injury wasn't as pronounced.

I suspect they have a genetic predisposition to these reactions as my own dh received the new dtap last year and he had a horribly high fever, his arm went solid and he was really ill for 2 days with a high fever of about 103.

What she is talking about is probably chelation. It's not as hokey as you'd believe. Many autistic kids have a hard time excreting heavy metals (regardless of the vaccines they did or didn't receive). We all take in a certain amount of heavy metals from food, air, water etc, but certain members of the population can't excrete it as well as the rest of us. Thus the metals build up and can add to or even cause much of the autistic behaviours.

Chelation is very serious and has to be overseen by a well trained and qualified doctor, usually a developmental pediatrician or naturpath. It can be done via oral medicine or as simply as a cream rubbed on the parts of the body that help excrete the metals, eg: feet and the back.

I hope your friend is using a reputable doctor as there are many dev peds ut there who really seem to be raking it in and many families have no idea whether it'll work or not. Still I know personally of two boys who have been chelated and there was absolutely improvement. I would consider it for my boys when we have exhausted all other treatments. ie: my oldest is doing well on a gluten and casein free diet. Not to mention chelation testing alone to check for these metals is about $200 and that's before the chelation therapy. I don't know about other parents of autistic kids, we are in debt as it is, lol

sorry so long winded, hth

Dee

iVillage Member
Registered: 10-21-2004
Wed, 09-10-2008 - 12:30pm

Side note on the fever theory...

 

iVillage Member
Registered: 04-28-2007
Wed, 09-10-2008 - 3:42pm

<"get the vaccine and make sure you pump them full of lots of tylenol so that they don't get autism".>

Yeah we did do that, still ended up with boys on the spectrum. I know certain people are more prone to fevers than others, but actually my two have a low average temp (97) and so when they hit 104, it's off the charts compared to others who would get 104 when they are nomally right at 98.6

This is the problem with indidividual immune systems. One chidl's 105 is another child's brain damage.

iVillage Member
Registered: 10-21-2004
Wed, 09-10-2008 - 4:31pm

Dee, I absolutely agree that a high temp can be a sign that intervention is necessary.

 

iVillage Member
Registered: 04-02-2008
Thu, 09-11-2008 - 11:01am

Thanks for answering my questions, Dee. You weren't long-winded, just very informative! :-) I wish you and your boys the best and hope the current treatments continue to work.

p.s. Your boys are really cute!

Shyla

Shyla - Mom to Anna, born 9/12/07
iVillage Member
Registered: 04-02-2008
Thu, 09-11-2008 - 11:25am

juni_bee -

That's pretty much exactly what my friend was told by her ped. You may by right...

Are you not vaccinating your children due to the autism fear, or do you feel they aren't necessary? I am so torn on the issue. Anna gets her 12 months shots next week (including the MMR) and I'm starting to get nervous about it with all this attention on autism. I know not EVERY child that gets vaccinated develops autism, so like Dee said, there probably is a genetic predisposition, but of course you wouldn't know your child is at risk until afterward! Someone somewhere mentioned that they had no fear of their child overcoming measles, mumps, or rubella, so the risk of contracting those diseases was far inferior to the prospect of living with autism forever. That idea keeps creeping up in my head. I wonder why some kids these days succumb to these diseases that are treatable with modern medicine. Anna is very healthy and hasn't so much as had a cold yet, so I think she would also recover relatively easily from a disease like that. Although, it seems selfish to put other perhaps less healthy children at risk of getting it from her if she ever was infected. Anyway, I'm starting to ramble, so I'll stop here. Congrats on your new baby! :-)

Shyla

Shyla - Mom to Anna, born 9/12/07
iVillage Member
Registered: 10-21-2004
Thu, 09-11-2008 - 11:31am

Thanks Shyla,


No, it's not because of autism that I don't vaccinate.

 

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