Virginia teen suffers rare illness...

iVillage Member
Registered: 08-09-2009
Virginia teen suffers rare illness...
134
Thu, 11-12-2009 - 3:51am

Boy diagnosed with Guillain-Barre syndrome, but CDC says no clear link

Jordan McFarland, 14, was hospitalized for five days after coming down with Guillain-Barre syndrome hours after receiving a vaccination for H1N1.

By JoNel Aleccia
Health writer
Nov. 11, 2009

A 14-year-old Virginia boy is weak and struggling to walk after coming down with a reported case of Guillain-Barre syndrome within hours after receiving the H1N1 vaccine for swine flu.

Jordan McFarland, a high school athlete from Alexandria, Va., left Inova Fairfax Hospital for Children Tuesday night in a wheelchair nearly a week after developing severe headaches, muscle spasms and weakness in his legs following a swine flu shot. He will likely need the assistance of a walker for four to six weeks, plus extensive physical therapy.

“The doctor said I’ll recover fully, but it’s going to take some time,” the teenager said.

Jordan is among the first people in the nation to report developing the potentially life-threatening muscle disorder after receiving the H1N1 vaccine this fall. His alarming reaction was submitted via msnbc.com’s reader reporting tool, First Person, by his stepmother, Arlene Connin.

http://katysexposure.wordpress.com/2009/11/12/virginia-teen-suffers-rare-illness-guillain-barre-after-swine-flu-shot/

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iVillage Member
Registered: 06-24-2008
Sat, 11-21-2009 - 7:01pm

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First off -- WOW .. I've never even exchanged any sort of commentary with you and you attack me right out of the starting gate? Glad you're here to participate in respectful conversation.. you and serenity oughta talk.

Did I say that you are a liar, or are you drawing that conclusion by yourself? Pretty sure I never called anyone, anything! I was requesting more information .. As I don't see how H1N1 infection by itself would result in cardiac arrest.

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"We" .. means who? What sort of healthcare professional are you, please identify! I'm curious to what extent I can pick your brain!


"put on heart machines" .. please elaborate .. I was always under the impression that such machines were for surgical procedures. If you are talking about a ventilator .. well, then, we need not go any further with this discussion.

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How? Really .. without being septic .. I want to know! I've never heard of such a thing, and I work on a telemetry unit with my fair share of cardiac patients!

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That may be so .. but that does not make H1N1 the cause of death .. what were the other comorbidities? Obesity, diabetes, hypertension, hyperlipidemia, smoking, etc?

I'm seriously not buying into the "perfectly healthy people are dying" plot here .. Pefectly healthy people are not coming to the hospital with H1N1 .. they are weathering it at home with lots of rest and keeping hydrated.

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Can you really be 100% (or even 85% sure of that?) Where is the data to back this up?




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Edited 11/21/2009 7:06 pm ET by milacelcia


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iVillage Member
Registered: 08-09-2009
Sat, 11-21-2009 - 7:04pm

You say they were at death's door when they came in. Sounds like a case of the parents not paying enough attention. We know swine flu is out and the smart thing for us all to do is go to the doctor when we see symptoms of it. That's how you beat illnesses. By monitoring them BEFORE they get too bad.

I still think we're over reacting.

iVillage Member
Registered: 08-09-2009
Sat, 11-21-2009 - 7:11pm

>>you and serenity oughta talk.<<

Hey now. You're supposed to be the one that replies respectfully and intelligently. I didn't come in attacking you. I waited a couple of posts first...THEN dug in. I'm kidding, of course. I didn't come in pretending to know everything and try to uproot everyone's theories on the H1N1. I came in saying I didn't know what I felt about the vaccine.

How thoughtful of you, though.

BTW, between you and that other person, I agree with you. But don't let that go to your head or anything. I have an appearance to keep up here.

iVillage Member
Registered: 06-24-2008
Sat, 11-21-2009 - 7:49pm
Thank you Serenity. I appreciate your response. I do try to be respectful around here. Sometimes, I just can't help it though.



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iVillage Member
Registered: 08-09-2009
Sun, 11-22-2009 - 7:56am
It's ok. I find I can't help myself more often than not =P
iVillage Member
Registered: 04-28-2007
Sun, 11-22-2009 - 5:06pm
Hi Alice...missed you;)
iVillage Member
Registered: 11-20-2009
Sun, 11-22-2009 - 6:32pm

You are a little difficult to understand but if I am reading this correctly you are asserting that had these individuals been vaccinated they would not be in the situation they are in, right? Do you have some sort of crystal ball that enables you to determine what person will not have a primary failure of the vaccine (I assume you understand that vaccine are not 100% effective)? Were each of these patients confirmed to be infected with the H1N1 strain included in the vaccine by a lab or did they present with ILI or was confirmation done via rapid testing? What was the treatment protocol? Antipyretics upon admission?

iVillage Member
Registered: 11-20-2009
Sun, 11-22-2009 - 6:44pm

don't see how H1N1 infection by itself would result in cardiac arrest.


You don't see how I thought you were calling me a liar when you just made this statement again. Hmmmm.....


"We" .. means who? What sort of healthcare professional are you, please identify! I'm curious to what extent I can pick your brain


I am a pediatric Occupational Therapist working in the ICUs with the physicians and so I read their notes carefully before I treat a patient so that is how I know all these details. I rehabilitate these unfortunate cases that would have been prevented had they had a simple vaccination.Heart machines meaning ECHMO that helps their heart that has been diseased from the flu.


Obesity, diabetes, hypertension, hyperlipidemia, smoking, etc? THESE ARE KIDS FOR GOD"S SAKE and no none were diabetic and obese.


I'm seriously not buying into the "perfectly healthy people are dying" plot here .. Pefectly healthy people are not coming to the hospital with H1N1 .. they are weathering it at home with lots of rest and keeping hydrated.


See there you go again basically accusing me that I do not know what I am talking about. These are perfectly healthy cases. Out of the 3 cases that we have gotten in the past 3 weeks (about 1 per week is what we are getting) only 1 had a premorbid diagnsosis of down's syndrome. The other two were perfectly healthy. Did you read of the 13 year old who died recently in Canada? To my knowledge he had no history of premorbid problems. He was young, atheletic a hockey player and dropped dead from the fricken FLU!!!!!!!!!!!!What more proof do you need when NONE of these people were vaccinated. You keep sweeping the proof under the rug - hopefully your child won't need the protection but then again if something happened could you live with the fact that you could have done something as simple as a vaccination to save them and you chose not to. Hmmmm, pretty thought provoking.


iVillage Member
Registered: 11-20-2009
Sun, 11-22-2009 - 6:49pm

You say they were at death's door when they came in. Sounds like a case of the parents not paying enough attention. We know swine flu is out and the smart thing for us all to do is go to the doctor when we see symptoms of it. That's how you beat illnesses. By monitoring them BEFORE they get too bad.


I still think we're over reacting.




In all of the case secnarios I am referring to they had been taken to their own doctors without any help. You have NO idea how fast this can take a turn for the worse overnight or in a matter of hours. But that's fine believe what you want - you all don't have first hand exepierence so I guess that makes you guys more expertised then I do who sees it first hand every day in the hospital setting.
iVillage Member
Registered: 04-22-2005
Sun, 11-22-2009 - 7:10pm

<

You don't see how I thought you were calling me a liar when you just made this statement again. Hmmmm.....>>

In her defense, seeking clarification and details is not the same as calling a person a liar. I believe you that the infection eventually led to cardiac arrest, but I don't understand the mechanisms by which it did so. I'd like to know.











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