violetmarie-2004
Find a Conversation
violetmarie-2004
| Sat, 05-01-2004 - 9:19pm |
My son has Bronchomalacia. He was diagnosed at 3 months after having had a lobectomy (part of his right lung removed) due to a congenital condition. They diagnosed it with a bronchoscopy. First they treated him for reflux, then they did a barium swallow and saw that he was having some swallowing problems and reflux, we treated those things and saw no improvement in symptoms so finally a bronchoscopy was done and the found out about the bronchomalacia. My son sees a pediatric pulmonologist at a children's hospital. I would recommend that to you. Talk to your ped and if they are not willing to help you you need to find someone who will. Someone who will work with you until you find the problem. You as a mom know your baby and know something isn't right I know it is exhausting but you have to keep pushing those doctors. I am so thankful that my ped is so wonderful at pushing for answers. It was work for me too but she was great. So I wish you luck and will pray for your answers and strength. Where are you located? I know of some great places for babies with breathing problems. I will find the names of the places and see if you are near any. Feel free to e-mail me randynrebecca@comcast.net

Violet
My son sometimes has stridor but mostly with a severe cold. He constantly wheezes and retracts(pulls in around his ribs) looks like he's working hard to breathe. He too however is doing better as he gets older.
Rebecca
Violet