Not sure how Stephanie has gotten through this so far!
Many prayers and positive thoughts coming her way. Stay strong....
This morning was a hard one. Tyler's heart rate dropped to 30 just from getting his mouth cleaned and suctioned. Something very routine and not usually upsetting. He's getting more and more fragile. The Dr strongly urged us to put in that DNR order and we agreed. They said the chances of pulling out of this are pretty much nothing. Tyler's lungs are worse today. The ultrasound showed that his kidneys are worse and his liver is still very severe VOD. His belly is starting to get a little bigger again too because they aren't able to pull off as much fluid.
The Dr feels we are only supporting his body and that the Tyler we knew is no longer there. She was trying to make it easier. Yet when I kissed his nose and his cheek this morning, he was looking at me and then suddenly raised up his chin and
Here's the lastest on Stephanie and Tyler.
My heart is breaking as I can almost hear the pain in her words.
Hey there Beckey!
I learmed last night that Stephanie's son Tyler passed away yesterday at around 4:30. PM.
I'm so sorry to hear the latest....it is heartbreaking. Praying and thinking of this family.
Today she announced funeral arrangements for her baby........so sad!