update on us/Eric
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|Tue, 12-15-2009 - 1:25am|
Hi guys!! I know I have really fallen off the board. I thought I would come by and say "HI" and do a lil update on Eric.
He's doing well, we are getting settled here in 'as far west' Texas as you can get. We had our first visit with the Pediatrician to get all his 'specialist' referrals put in. He seen the new GI, and he ordered a gastric emptying scan and an upper gi/barium swallow study. the swallow study was normal but the GES showed he is still refluxing and he's suppose to empty 50% of the formula in an hour, he emptied 49% so they aren't all that worried about it. They did start him back on nexium for the reflux, I left there very frustrated tho because this doc is not concerned at all about him not eating solids. He thinks because he's holding his own with the elemental formula (peptamen jr) that he's ok. I on the other hand am not ok with this. He then seen the new neurologist, very nice guy and is concerned with him not eating and his sensory issues, he put in for Eric to start his PT/OT/ST again and he also is concerned with the delays and everything else going on and was completely shocked to learn he'd never had an EEG, so, we are scheduled for an EEG on Jan 7th. He also had some blood work done. We go back to see GI for weight check in January and the neuro sometime in Feb. We are also going to be traveling up to Albuquerque, NM for Eric to see a Ped. Geneticist in March and we'll see what this new doc has to say also. So, that's our update.
I added a pic of our new found enjoyment, hiking the Franklin Mountains.