I don't have any experience with that,
TTC #1 October/November 2009
BFP December 14th, 2009 :)
Beebes ((((((HUGS))))) I am so sorry you have this scare and the stress that goes along with it. I will keep you and your LO in my prayers. Please KUP.
I do have experience with this. My son had fluid in his left ventrical also (never knew there was an official name for it). His head also was always measuring ahead and still is at 30 months old. They told us through the pregnancy that the fluid was measuring slightly big in that ventrical the whole time. They weren't concerned enough to do the MRI in utero (didn't even know that was an option) because it was just over their cutoff point. I can't remember what it was cause that was almost 3 years ago.
So basically, they did an u/s in the hospital when he was two days old and the measurement was back under the cutoff. The twins were 5+ weeks early, so they were checking for brain bleeds too and just generally doing a brain scan since his head was 97% even that early. They said he's all brains in there and sometimes u/s in utero can be inaccurate. In this case, the u/s in utero were wrong in our favor and he was fine. His pediatrician ordered another u/s at 12 months old because his soft spot hadn't closed yet and his head size was literally off the charts too big. Still nothing wrong, all brains, just a big head.
While there isn't anything anatomically wrong with his brain, he is still not completely a normally developing kid. I would love to tell you that he is 100% fine, but he was diagnosed with high functioning austism in November last year and he does have some sensory issues. Of course we have no idea what it's caused by and we can't even speculate whether or not that extra fluid in his brain is related at all, but I just can't tell you for sure that it isn't. I *can* tell you that he is super intelligent and very sweet. He just has some behavioral quirks which are getting better with therapy.
Good luck with your MRI! Are there any concerns with the effects of the test on an unborn baby? I've never heard of anyone getting an MRI while pregnant.
Just want to send you big hugs and to know that you and your little one are in my thoughts and prayers.
Sending lots of prayers your way.
Thank you all so much for the prayers, and thank you Katie for your experience.
Sorry to hear the latest measurement went up :( I'm glad you can get reassurance from the MRI. If you voice that you're really concerned and would like your referring doc to have the results right away, I'm sure they can get it to the doc the same day or the next day. Usually the person that runs the test can't tell you anything immediately, but sometimes they will take it to the radiologist on call while you wait in the waiting room for a preliminary verbal report.
That is great to hear about your son doing so much better. We were not really surprised by Liam's diagnosis. He was 27 months old at that time, but we knew something was "off" since he was an itty bitty baby (even 2 months old) and he flagged the autism screenings with the pediatrician every time starting at 12 months. We had two different developmental pediatricians that told us they would put him on the spectrum (on the very mild side) but they did say that some dev peds wouldn't. That's how borderline and "high functioning" he is. They didn't want to give him a spectrum classification until he's older, so we don't know if he has aspergers or PPD-NOS. They basically did decide to give him a general diagnosis so that he could qualify for therapies through the county school system. We had him evaluated by the county services at 20 months and they didn't qualify him because he "wasn't delayed enough", but the diagnosis along with another set of evaluations at 28 months was able to get him speech therapy once a week and an occupational therapy class twice a week.
Sorry to go off on that tangent. Yes, they followed his head size and that possible extra fluid in his ventricle for a while after birth. u/s in utero can so be so inaccurate. I hope that's the case for you. Definitely let us know how it goes and what you find out!! Good luck!