DS Heath update - OT

iVillage Member
Registered: 04-27-2000
DS Heath update - OT
17
Sat, 07-09-2011 - 11:00am

My DS has been participating in a clinical trial at NIH for a rare pediatric autoimmune disorder.

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iVillage Member
Registered: 04-09-2006
Sat, 07-09-2011 - 12:00pm
Wow...great news!

Deborah
iVillage Member
Registered: 07-23-2002
Sat, 07-09-2011 - 12:06pm
Fabulous! Thanks for the update!

Miranda

Miranda
in rural BC, Canada
mom to three great kids and one great grown-up
unschooler, violist, runner, doc 

iVillage Member
Registered: 01-04-2002
Sat, 07-09-2011 - 12:38pm

That is wonderful news.

iVillage Member
Registered: 01-05-2005
Sat, 07-09-2011 - 4:29pm

That's great news! Is this a one-time treatment (if it works) or will it be something that he continues going forward? How is he dealing with the treatment itself (the IV part)?

Avatar for turtletime
iVillage Member
Registered: 05-13-1998
Sat, 07-09-2011 - 8:27pm
I'm so happy to hear that! It must be such a joy for all of you to watch the improvements. Here's to continued progress!
iVillage Member
Registered: 04-27-2000
Sun, 07-10-2011 - 9:11am

He still has to be in the hospital two more times for testing.

iVillage Member
Registered: 09-13-1999
Sun, 07-10-2011 - 9:55am

How wonderful and what an enormous relief!

iVillage Member
Registered: 01-05-2005
Sun, 07-10-2011 - 1:08pm

He still has to be in the hospital two more times for testing.

iVillage Member
Registered: 12-06-2010
Mon, 07-11-2011 - 2:29am
What wonderful news! Lots of positive thoughts for you and your son.
iVillage Member
Registered: 04-16-2001
Wed, 07-13-2011 - 2:27pm
Great news! So happy he is feeling better and growing. Thanks for the update.

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