WWYD Medical ? - Attendance at teen conference?

iVillage Member
Registered: 04-27-2000
WWYD Medical ? - Attendance at teen conference?
13
Mon, 04-01-2013 - 8:27pm

DS has been in remission from autoimmune disorder symptoms for nearly one year.  His labs last week showed fairly low overall immune function.  But at that level that’s not quite terrible enough to treat, but certainly not optimal.  Other labs all okay.  He is on daily prophylactic antibiotics.  His team just got invited to the largest national/international HS robotics competition.  It means 20 hours each way on a bus, plus three 18+ hour days at the event.  If DS goes, DH also will be attending - so at least DS will be reminded to take medications.  During last week's three-day robotics tournament, DS lost four pounds (bringing him down to 111 pounds at 5' 10 1/2" tall). And that was WITH DH right there force feeding the kid every three hours, and getting home to get sufficient rest in his own bed.  DS has extreme sensory issues and only eats a few dozen foods, so finding food while on the road is problematic.   Also, DS sleeps nine hours every night like clock-work.  Never less.  He totally needs it.  On the one hand, this is a huge opportunity not likely to be repeated.  At the moment, he's in fair shape and I want him to enjoy his life while this lasts.  But part of me is afraid of the possible set-back.  WWYD if this was your 14 yr old?  Thanks.

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iVillage Member
Registered: 07-23-2002
Sat, 05-04-2013 - 11:36pm

So, has he gone yet? How did it go?

Miranda

Miranda
in rural BC, Canada
mom to three great kids and one great grown-up
unschooler, violist, runner, doc 

iVillage Member
Registered: 04-26-2013
Fri, 04-26-2013 - 12:56pm

One of the hardest things for me is seeing that my son is missing out on fun things that all the other kids without health issues take for granted.  I would find a way to go.

iVillage Member
Registered: 04-27-2000
Thu, 04-04-2013 - 9:52am

Gwen, nice to know I'm not alone.  Thanks!

iVillage Member
Registered: 04-27-2000
Thu, 04-04-2013 - 9:52am

Gwen, nice to know I'm not alone.  Thanks!

iVillage Member
Registered: 05-18-2005
Wed, 04-03-2013 - 3:07pm

As someone who was a chronically sickly, underweight kid--I say go!  If DH is going, have him pack along a cooler of his favorite snacks or something. 

Gwen

http://i218.photobucket.com/albums/cc248/gwennyc/b6yfcl.png<A href="http://s218.photobucket

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iVillage Member
Registered: 05-13-1998
Wed, 04-03-2013 - 11:42am
Yeah! I'm glad there are options that make you more comfortable. It is such a cool opportunity! Let us know how it goes!
iVillage Member
Registered: 04-16-2001
Wed, 04-03-2013 - 10:12am

Great!  And congrats to your ds!  What a wonderful opportunity. 

iVillage Member
Registered: 04-27-2000
Wed, 04-03-2013 - 7:29am

Thanks, all.  I knew this was off topic, but posted it here anyway because I wanted your advice.  We are giving DS three options - 1) fly both ways w/DH and bunk w/ the kids, 2) bus with the kids and room w/DH, or 3) fly and room w/DH.  DH is going to discretely tell the two main adults overseeing the event that DS has some medical stuff going on, so they will be aware that, if he bows out early to go to bed, he isn't intentionally shirking his duties.  Hoping that if he isn't burning his candle entirely at both ends, all will end up for the best.  Feeling more comfortable about this now.  Thanks again.  - Suzanne

iVillage Member
Registered: 05-27-1998
Tue, 04-02-2013 - 4:39pm

Like the others, I would let him go under the condition that he accept any necessary accommodations. This is an opportunity that may not come again.

We had a somewhat similar, although less serious, issue last summer when our son went last summer  to work on a labor-intensive service project for a week. He also has sensory issues (Asperger's related) and is a very underweight, picky eater with a severe peanut allergy. But I had a great discussion with the cook at the church that was housing the kids, and she went over the menus with me beforehand, so that my son would know what to expect. Because getting enough calories is a major thing for him, I also encouraged him to load up his suitcase with stuff he would be willing to eat if he just couldn't stomach the food. So this included such healthy morsels as cheddar goldfish and cinnamon pop-tarts.

If your son has preferred foods that pack well, even if they're not nutritious, I'd encourage him to pack them because at a certain point, you just need fuel to stay alive and can make up for deficiencies later.

iVillage Member
Registered: 09-13-1999
Tue, 04-02-2013 - 3:13pm

Well, first of all congratulations!  That sounds like an exciting opportunity for your son.

I agree with everyone: if your ds wants to do this, finding a way to do it with accommodations sounds like the way to go.   Best of luck!  I hope you and he can figure something out that works!

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