WWYD Medical ? - Attendance at teen conference?

iVillage Member
Registered: 04-27-2000
WWYD Medical ? - Attendance at teen conference?
13
Mon, 04-01-2013 - 8:27pm

DS has been in remission from autoimmune disorder symptoms for nearly one year.  His labs last week showed fairly low overall immune function.  But at that level that’s not quite terrible enough to treat, but certainly not optimal.  Other labs all okay.  He is on daily prophylactic antibiotics.  His team just got invited to the largest national/international HS robotics competition.  It means 20 hours each way on a bus, plus three 18+ hour days at the event.  If DS goes, DH also will be attending - so at least DS will be reminded to take medications.  During last week's three-day robotics tournament, DS lost four pounds (bringing him down to 111 pounds at 5' 10 1/2" tall). And that was WITH DH right there force feeding the kid every three hours, and getting home to get sufficient rest in his own bed.  DS has extreme sensory issues and only eats a few dozen foods, so finding food while on the road is problematic.   Also, DS sleeps nine hours every night like clock-work.  Never less.  He totally needs it.  On the one hand, this is a huge opportunity not likely to be repeated.  At the moment, he's in fair shape and I want him to enjoy his life while this lasts.  But part of me is afraid of the possible set-back.  WWYD if this was your 14 yr old?  Thanks.

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iVillage Member
Registered: 04-27-2000
Thu, 04-04-2013 - 9:52am

Gwen, nice to know I'm not alone.  Thanks!

iVillage Member
Registered: 04-26-2013
Fri, 04-26-2013 - 12:56pm

One of the hardest things for me is seeing that my son is missing out on fun things that all the other kids without health issues take for granted.  I would find a way to go.

iVillage Member
Registered: 07-23-2002
Sat, 05-04-2013 - 11:36pm

So, has he gone yet? How did it go?

Miranda

Miranda
in rural BC, Canada
mom to three great kids and one great grown-up
unschooler, violist, runner, doc 

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