Dyslexia and a schools obligation...(sorry this got really long)

iVillage Member
Registered: 03-26-2003
Dyslexia and a schools obligation...(sorry this got really long)
19
Thu, 03-24-2011 - 12:21am

My son started in early intervention with a speech motor planning issue. He went into special ed. pre-school for his speech issue and entered kindergarten with the school telling me he no longer qualified. Which was ridiculous...I immediately asked for an evaluation which they kind of dragged there feet on and wanted to take a wait and see attitude. I wanted to believe that he was indeed improving and on grade level. First grade starts in September and it is clear he is lagging behind his peers. I demand they test my child for a learning disability. He is tested and found to have an average low score in working memory but Very Superior scores in spatial reasoning and visual/perceptual skills... all other area's fell in average or average high. Our school system qualifies him for an IEP based on the score difference between low average working memory and very superior score in the two other area's.

He is now in second grade and still can not read. He still has a speech motor planning issue but it has improved and is hard to detect unless you know him. He still qualifies and receives speech once a week, one on one and in a small group every other week. He continues to improve.

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iVillage Member
Registered: 10-08-2004
Hi and welcome to the board. My son is in 4th grade now and was diagnosed with Dyslexia at the beginning of 3rd grade. He was in SPED for his entire 2nd grade year under LD, now w/ the diagnoses he is SLD/ Dyslexia.

I had my son tested throught he Scottish Rite Learning centers. We are in AL, just google to find Scottish Rite Learning centers in your state. Call them and get him on the schedule for the testing. It is FREE. What state are you in?

I do not believe you can get your district to pay for him to private school. I won't swear that I am right but I have never heard of this. I do know that if the child is in a private school they can still get services from their local public district and still attend the private school.

It actually turned out that my school district has a Dyslexia tutor on staff. They did not supply me w/ this information, I had to ask and dig to find out. My son has now been not only receiving his SPED services for 2 years he has also been getting Dyslexia tutoring through the school system as well.

Nathaniel is still about a year behind in his reading level, getting ready to go into 5th grade and reading on a 3.8-4.2 reading level. I think the thing that slayed me the most when I had him tested was that my son didn't even know his ABC's. I never really thought about it until then. The teacher who tested him at the Scottish Rite asked him to write his ABC's and he left out letters, put them out of order and any he thought of at the end he just put at the end. Thinking back he never sang his ABC's as a preschooler. He just learned to sing them all the way through in the 3rd grade. We word chunk a lot, we use lowercase magnet letters where the constants are blue and the vowels are red to build his spelling words each week.

For example if his word is 'forgot' I give him the F O R G O T but not in the right order, I say the word and have him put them in the right order.

I am so lucky to have my sister who is a teacher and getting ready to take the Orton-Gillingham training but I have had to do alot of educating myself too.
Have you ever read 'The Gift of Dyslexia'? If not I recommend it, that was my starting point. You can also look into taking some online training yourself that is very inexpensive. I find that I am my son's first teacher and when the school day is over he is at home with me and doing his homework.
www.dyslexia-parent.com is a great website to look at as well.

Please ask away if you have any questions, I am more than happy to help you, lend an ear and just be here for you. I remember all to well starting this journey with my son.

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iVillage Member
Registered: 05-02-2004

Because your son has other issues related to muscle control, you should have him checked to see if his eyes are working properly together.

iVillage Member
Registered: 05-02-2004
Here is something else if you are willing to work with him at home:
http://readingkingdom.com/

It is supposed to be good for kids with dyslexia (it says, but I haven't found outside reviews) , as well as other reading issues. What I like is that they currently have a free 30 day trial. It may be that if you work with this after school that you can bring him up to more where he needs to be if the school cannot supply the appropriate program for you.

I haven't done the trial yet, but am thinking of using it as my next phonics program for my 6 year old when we finish his current program that only goes to about 1st grade level. I may also get my 9 year old, who did the vision therapy last year, to test and see because he missed out on some stuff that he should know because he just couldn't really see it. Decoding skills are still a bit weak for him.
iVillage Member
Registered: 03-26-2003

Thank you all for your responses! My son has a speech motor planning issue, he does not have any muscle control issue, or tracking issues....His articulation is very good and even his vocabulary can be quite extensive. His motor planning issues are about having to arrange thoughts

iVillage Member
Registered: 03-26-2003
Ugh.... I see so many typos in this. Sorry, I was on a roll. : o)
iVillage Member
Registered: 10-08-2004
Please have him evaluated for Dyslexia. Often times people think children have things like ADHD when they actually have something like Dyselxia.

My son, very much like yours has always had wonderful articulation and his verbal skills have always been WAY ABOVE AVERAGE. Right now he is in the 4th grade and his verbal/language skills are that of a 7th grader.
If copying from the board is hard for him, I know it is a challenge for my son, you could ask that the teachers accommodate this by providing him w/ a typed paper of what is on the board instead of him having to copy it. I know for Nathaniel the teachers will copy another students notes that they took from the board for Nathaniel to take home and study for a science or social studies test. This is definitley an accommodation you can ask for.
As for loosing more and more one on one during the school day during budget cuts. You can only loose what you let them take away from you. You do not have to sign any IEP you do not agree 100% with. The school cannot enact an IEP without your signature/consent as long as you show up to every single scheduled IEP meeting. Our school is wanting me to reduce Nathaniels 1 hour of daily small group for reading to 30mins and I am NOT going to sign off on it. They tried making me do it last year and I wouldn't. I will not do it again this year. My theory is, I've got nothing but time and if they want to sit there with me at a stale mate then I am fine with it. I will not sign the IEP until it is what I want for my son.
My family told me the same things about Nathaniel, that he would catch up. But I always saw the same things, it was the same pattern every year. I am glad I had him evaluated b/c that told the truth about why he was struggling.
Please get him evaluated ASAP. Remember, you can go through your local Scottish Rite.

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iVillage Member
Registered: 10-23-2000
I'm no expert, but your DS sounds EXACTLY like my Brian (now age 9). I hate to say this, but I strongly suspect your DS's speech issues are far worse than you believe. You need to have him PRIVATELY evalauted ASAP, because if he's like my Brian, he compensates so well that no one knows he cannot do specific tasks until he is specifically tested. I suspect your little guy had apraxia, which is a very rare speech issue that almost always becomes dyslexia. If so, one ST session a week is COMPLETELY UNACCEPTABLE. Your child needs at least three, probably four or five, sessions a week, in addition to the reading stuff. Good luck.
iVillage Member
Registered: 05-02-2004

Really, consider the eye tracking issue.

iVillage Member
Registered: 04-11-2011

Hi,

My son is 14 and has severe issues w/ dyslexia. We didn't find out until he was tested in April of 2010. He has been home schooled since 2008 when we pulled him out of public school because he was so far behind. Since finding out about the dyslexia we have a great tutor but would like for him to go back to school. We live in Alabama as well and looking for a school district with

iVillage Member
Registered: 10-08-2004
I'm sending you a private message about this.

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