update since i've gotten a few messages asking how we are doing

iVillage Member
Registered: 10-23-2002
update since i've gotten a few messages asking how we are doing
16
Wed, 03-16-2011 - 8:36pm

as i said before Lily was pronounced deceased feb 13 2011 at 6:11 PM. the resulting cause was she had influzena B which caused her to get encephalitis which shut her brain down... we'll never know why the flu affected her like this despite having her flu shot this year.

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Avatar for graycygnet
iVillage Member
Registered: 03-26-2003

I am so sorry to hear of your loss and will be praying for you and your family and also for a safe delivery of your little girl.

iVillage Member
Registered: 01-17-2005

I've been thinking of you and praying for your whole family. Thanks for the update. I hope Alex;'s therapist is a good fit. I can't really even imagine what you're going through. Please know there are lots of prayers heading your way!

Jill

Avatar for sweetviolets
iVillage Member
Registered: 06-30-2003

Our family has had yours in our thoughts and continues to do so.

iVillage Member
Registered: 07-26-1997
It was nice so many benefited from Lily's organs. Nice to hear the new baby is going to be ok.

 

iVillage Member
Registered: 04-06-2003

Oh goodness, there's just really no way to cope with your loss; I can't imagine what Alex is going through.

iVillage Member
Registered: 10-23-2002
Thanks Kay. I did remember your daughter had a pacemaker but didn't remember it was heartblock. My OB still has me coming inweekly even though it's thought nOt to be heartblock any longer at Fridays appointment her heartbeat was still normal. I'm now at a positive 1 pound weight gain( I had Hyperemesis for 16 weeks so lost 20 pounds). Alex started play theraphy he has regression issues separation anxiety plus they suggested melatonin cause he's having trouble going to sleep. The therapist said at his age regression is normal for something like this as he just doesn't have the ability to cope with this so he'll be in therapy a while teaching himto cope.
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iVillage Member
Registered: 04-06-2003

Oh Chelle,

I am glad to hear from you.

iVillage Member
Registered: 03-07-2005

Chelle,

I have been away from the boards for awhile. I just read your post. I am so sorry for your loss that I cannot even put it into words. I know your children are and will always be the apple of your eye. I will definately pray for your family, Alex, and your precious Lily who is in God's hands and lives on through others.

Avatar for louannems
iVillage Member
Registered: 03-27-2003

Thank you for the update.

iVillage Member
Registered: 10-05-2009
thank you for the update. I can only imagine how hard it's all been. You have blessed so many families with your generous gifts of Lily's organs. HUGS all around.

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